Children with medical complexity account for about 40 percent of pediatric Medicaid spending, yet comprise only 3 percent of the pediatric population. Currently, no population measures exist to describe these children, who have diverse conditions of variable severity. A new study published in Pediatrics suggests 10 potential outcome domains as a starting point.
New research from Mathematica Policy Research weighs the question: “Can we draw lessons from Medicare to improve care coordination for children with special health care needs - especially those covered by Medicaid?” The answer is yes.
Improving care coordination for children with special health care needs and their families is the goal of two grants awarded March 1 by the Lucile Packard Foundation for Children's Health. Researchers from Children's Hospital Buffalo will design a family-centered system of care coordination for children with medical complexity, and Health Management Associates will examine states that have made progress toward inter-agency collaboration.
Eleven young researchers have completed projects and published journal articles on ways to improve the health care system for children with special needs. Their work covers a range of issues, including children’s transition from the hospital care to primary care; education of pediatric residents; transition of care from adolescence to adulthood; and use of group visits to increase efficiency.
Richard Antonelli, MD, MS, Boston Children’s Hospital
Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.