Families of CSHCN are the experts on their children’s health care and on how systems and services could function more effectively to meet their needs. However, many family members lack the skills, confidence, and support to pursue advocacy and leadership roles in system change. That’s beginning to change in California.
May is Mental Health Awareness Month, a time to note that many children with special health care needs also require mental health care services. The California Legislature has proposed several bills that address children’s mental health. There are two current bills worth noting.
Nearly half of children with special health care needs rely on Medicaid. Edwin Park of the Center on Budget and Policy Priorities provides an analysis of the consequences of changing Medicaid to a block grant program.
Families from around California gathered in Sacramento February 27-28 for the 15th annual Family Voices of California Health Summit and Legislative Day. Presenters at the Summit included elected officials, community and agency leaders, as well as parent advocates. On Legislative Day, families and their children fanned out through the Capitol to visit legislators' offices and make the case for needed changes in the health care system.