Eleven young researchers have completed projects and published journal articles on ways to improve the health care system for children with special needs. Their work covers a range of issues, including children’s transition from the hospital care to primary care; education of pediatric residents; transition of care from adolescence to adulthood; and use of group visits to increase efficiency.
Richard Antonelli, MD, MS, Boston Children’s Hospital
Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.
Improving health care for children with complex chronic conditions is the focus of two grants awarded November 1 by the Lucile Packard Foundation for Children's Health. A third grant will support development of tools to measure the impact of family engagement in policymaking for children with special health care needs.
Three new awards from the Lucile Packard Foundation for Children’s Health will support research on outpatient and community-based approaches to improving the health and well-being of children, particularly those with complex medical needs. The work, funded by the Foundation’s newly established General Pediatric Innovator Awards, will be led by members of the Division of General Pediatrics at Stanford University.
Little is known about the relationship between receiving primary care in a medical home and unplanned hospital readmissions and emergency department visits among children with special health care needs (CSHCN). A new study, published in the journal Pediatrics, sheds lights on this issue.
Two members of the 5Cs recently presented on Multiagency Collaboration to Improve Care Coordination: A County-Level Case Study of Children with Special Health Care Needs at the Community Pediatrics Poster Session of the American Academy of Pediatrics National Conference in Washington, DC.
Ann Cirimele knows from personal experience how hard it is to navigate the health care system as a parent of a child with special health care needs. As the executive director of the Family Resource Network in Stockton, she’s helping families in rural California through the complexities of the system of care while also working with other local agencies to improve that system.
Grant funding always provides a welcome boost, but two coalitions that are members of the 5Cs are finding ways to carry on their shared care coordination work without outside support. Read their stories.