Helping families manage the complex system of care for their children with special health care needs is the focus of two new Foundation grants awarded June 5, 2014. A third grant is designed to increase families’ role in policymaking for state and county programs that serve these children.
A project to promote the use of telehealth for children with special health care needs and another to train parents in advocacy are among grants awarded April 2 by the Lucile Packard Foundation for Children’s Health.
For families of children with special health care needs, depending on managed care organizations can be worrisome, especially when their children require expensive and/or unusual services. A new study examines the approaches taken by three states, including California, to assuring that children with special health care needs are known to their managed care organization and that their needs are assessed so that appropriate care can be provided.
As the Affordable Care Act (ACA) is implemented, some California children and families will see changes to their health care plans and new opportunities for coverage. New issue briefs from the Insure the Uninsured Project examine the changes and explore how the State might alter existing programs and services to better serve children.
As manager of Help Me Grow Orange County, Rebecca Hernandez has for years helped connect families to health professionals and support services when they have concerns about their children’s health and development.