Families from around California gathered in Sacramento February 27-28 for the 15th annual Family Voices of California Health Summit and Legislative Day. Presenters at the Summit included elected officials, community and agency leaders, as well as parent advocates. On Legislative Day, families and their children fanned out through the Capitol to visit legislators' offices and make the case for needed changes in the health care system.
This morning, CNN published "An Intimate View of the 'Super Parents' of Chronically Ill Children," a story about our Foundation's photography project that documents the lives of families who have children with disabilities or chronic medical conditions.
The mother of an adult son with autism reflects on the North Miami police shooting of a therapist who was trying to help a young man with autism. Law enforcement officers must be trained to protect the entire population, she says.
Diane Stonecipher’s son, now 24, is blind, quadriplegic, profoundly delayed, and has been in hospice twice. Yet he doesn’t qualify for nursing care at home. Stonecipher, herself a nurse, says it’s time to train a new kind of workforce for in-home and residential care.
"What's in it for me?" That was the tongue-in-cheek response from Wanda Davis when she was asked how she engages busy health care program managers and providers in collaborative efforts to improve care coordination across agencies serving children with special health care needs and their families. Davis and two other members of the California Community Care Coordination Collaborative recently presented their work at the Help Me Grow National Forum in Greenville, South Carolina.