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Proposed changes in health care payment, from fee-for-service to alternative, risk-sharing payment models, can have a substantial impact on health services for children, especially those with complex care needs. In addition, tying payment to value can increase use of ambulatory and preventive services and encourage creative outreach. However, abrupt changes can interrupt continuity and reduce access to care. 

Panelists answer questions from a September 20 webinar on protecting rights of children with medical complexity in an era of spending reduction

The November 1, 2018 issue of the latest newsletter from the California Advocacy Network for Children with Special Health Care Needs.

What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable tradeoffs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefitting individual patients and families and securing fair distribution of benefits across populations, to operating in a manner that is transparent and free from conflicts of interest. 

Join us for a lively discussion on the article Evolving Federal and State Health Care Policy: Toward a More Integrated and Comprehensive Care-Delivery System for Children with Medical Complexity.

Whether it’s facing the shock of a first diagnosis or responding to the many challenges along the way, parents of children with special health care needs often find that their most highly valued source of support is an experienced and knowledgeable parent who has navigated the same path. But where to find such a parent? Family-to-Family Health Information Centers may provide the answer.

Panelists answer questions from a August 22 webinar on self-management in children and adolescents with complex chronic conditions.

The October 4, 2018 issue of the latest newsletter from the California Advocacy Network for Children with Special Health Care Needs.