Blog

Whether it’s facing the shock of a first diagnosis or responding to the many challenges along the way, parents of children with special health care needs often find that their most highly valued source of support is an experienced and knowledgeable parent who has navigated the same path. But where to find such a parent? Family-to-Family Health Information Centers may provide the answer.

Panelists answer questions from a August 22 webinar on self-management in children and adolescents with complex chronic conditions.

The October 4, 2018 issue of the latest newsletter from the California Advocacy Network for Children with Special Health Care Needs.

Join us for a lively discussion on the article Ethical Framework for Risk Stratification and Mitigation Programs for Children with Medical Complexity. The lead author and experts in the field will review what government and private health plans are doing and could do to promote optimal health, development, and family functioning for children with medical complexity.

The September 20, 2018 issue of the latest newsletter from the California Advocacy Network for Children with Special Health Care Needs.

Sufficient access to services for children with medical complexity varies considerably by state, geographic region, and payer. Families, advocates, and health care professionals need to understand children’s rights. Policymakers and payers must help support reliable and appropriate coverage and benefits. Learn how medical-legal partnerships and other forms of advocacy can protect the rights of children and support families in an era of cost containment. 

Panelists answer questions from a July 26 webinar on care coordination for children with medical complexity.

The September 6, 2018 issue of the latest newsletter from the California Advocacy Network for Children with Special Health Care Needs.

The August 23, 2018 issue of the latest newsletter from the California Advocacy Network for Children with Special Health Care Needs.