Grant funding always provides a welcome boost, but two coalitions that are members of the 5Cs are finding ways to carry on their shared care coordination work without outside support. Read their stories.
Pediatric care coordination is more talked about than done, given the challenge of providing “a patient- and family-centered, assessment-driven, team-based activity designed to meet the needs of children and youth while enhancing the caregiving capabilities of families.” Very ambitious. It’s not surprising then that families, who bear the brunt of absent or failed efforts to coordinate care, find it necessary to step in as the principal care coordinator. Here are some ideas of how to support them.
In an essay that includes her fantasy of an ideal Boot Camp to train parents to be advocates, Juno Duenas, long-time executive director of Support for Families, suggests that parents become the partner they would like to have: informed and educated, with healthy inner resources and a really good sense of humor.
Members of the California Community Care Coordination Collaborative addressed a standing-room-only audience on January 26 as part of the Association of Maternal and Child Health Programs Annual Conference in Washington, DC.