Keeping families at the center of children’s health care is always the priority of Family Voices, says Lynda Honberg, mother of a young adult with special health care needs and director of strategic partnerships for the national advocacy group.
Helping families manage the complex system of care for their children with special health care needs is the focus of two new Foundation grants awarded June 5, 2014. A third grant is designed to increase families’ role in policymaking for state and county programs that serve these children.
More than 100 readers of the bi-weekly newsletter of the California Advocacy Network for Children with Special Health Care Needs responded to a recent survey about the newsletter’s content, format and frequency. The results overall were quite positive, indicating that the newsletter helps fill an important niche for those interested in this population of children and their families. Respondents expressed the most interest in coverage of California policy, and they also suggested a variety of topics to cover.
A program to add more registered nurses in Massachusetts public schools more than justified its costs by reducing medical costs and the need for parents to stay home from work, according to a new study published in JAMA Pediatrics.
At Caring Corner, a pediatric day health center in Bakersfield, nursing director Meg Molloy oversees care for dozens of medically fragile children – “but we don’t treat them like they’re sick,” she says.