Marion Karian, Exceptional Parents Unlimited of Fresno
With funding from our foundation, Exceptional Parents Unlimited will build on and evaluate an existing care coordination system serving young children with cognitive, developmental and emotional problems to include children with special health care needs.
The Foundation seeks proposals from community-based, multi-agency coalitions in California with an interest in improving local systems of care coordination for CSHCN. Grants of up to $40,000 for 18-month projects will be awarded, and grantees will be required to participate in a multi-site learning collaborative with other community coalitions.
Support for Families is a parent-run San Francisco-based nonprofit organization, founded in 1982, that offers services and counsel free of charge to families of children with any kind of disability or special health care need.
When we surveyed our members in the Fall about Network priorities, care coordination emerged as the top issue for action. So I’m pleased to let you know that among eight grants approved by the Foundation’s board of directors last week, five grants focus on care coordination.
National and state reforms to health-care delivery – largely designed to improve care for older Americans – may inadvertently exacerbate health disparities for the youngest Americans. Nowhere is this danger greater than for children with complex health conditions who live at or near poverty.
Now that the health care reform bill has been upheld, our California Advocacy Network for Children with Special Health Care Needs will continue to work toward an improved delivery system for children in California’s Exchange program, Medi-Cal, the California Children’s Services program, and private health plans.