Elaine Korry’s recent public radio story on how health reform will affect chronically ill children in California is a must-listen for families of children with special health care needs and their advocates. Here’s why.
As policymakers determine health care benefits for the exchange, Medicaid’s comprehensive EPSDT benefit is cost-effective, and guarantees access to services. In contrast, benefits designed by states under the CHIP program serve as a lesson: they cost more, and they are less effective for children with special health care needs.
Marion Karian, Exceptional Parents Unlimited of Fresno
With funding from our foundation, Exceptional Parents Unlimited will build on and evaluate an existing care coordination system serving young children with cognitive, developmental and emotional problems to include children with special health care needs.
The Foundation seeks proposals from community-based, multi-agency coalitions in California with an interest in improving local systems of care coordination for CSHCN. Grants of up to $40,000 for 18-month projects will be awarded, and grantees will be required to participate in a multi-site learning collaborative with other community coalitions.
Support for Families is a parent-run San Francisco-based nonprofit organization, founded in 1982, that offers services and counsel free of charge to families of children with any kind of disability or special health care need.
When we surveyed our members in the Fall about Network priorities, care coordination emerged as the top issue for action. So I’m pleased to let you know that among eight grants approved by the Foundation’s board of directors last week, five grants focus on care coordination.