The Lucile Packard Foundation for Children’s Health works to ensure that children and youth with special needs will be served by a family-centered system that provides ready access to a comprehensive array of high-quality, coordinated services designed and delivered to efficiently and effectively meet their unique physical, emotional, social and developmental needs. We are pleased to sponsor the March 2018 issue of the PEDIATRICS Supplement: Building Systems that Work for Children with Complex Health Care Needs. These articles help to clarify some of the difficult, systemic issues and challenges affecting health care for these children, and point the way toward their resolution.

Throughout 2018 we will engage in discussions with authors and experts in the field to explore ways we can improve the system of care for children with chronic and complex health care needs. Check back often for updates!

Also See: A recent report from Delaware Health and Social Services on Managing the Health Care Needs of Children with Medical Complexity (PDF).

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A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions
Date and Time: August 22, 2018 10-11 am PST

While self-management support has been a component of adult chronic care for decades, it is just emerging as a critical need for children, especially those with complex conditions. Self-management is a shared undertaking between the child, their parents and care providers, and must take into account the child’s developmental status and the family’s capacities. Clinicians need routine, standardized approaches and tools to address the unique needs of children and their families including assessing self-management skills, collaboratively setting goals, and promoting competence and autonomy in youth. 
 
Join us for a lively discussion on the article, Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions. The lead author and experts in the field will share frameworks for pediatric self-management and how health systems could better support self-management by pediatric patients and their families. We suggest attendees read the article prior to the event. Audience Q&A is highly encouraged. Attendees can listen via web or phone. Read more.

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UPCOMING CONVERSATIONS

Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction
Date: September 20, 2018

ARCHIVED CONVERSATIONS

A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?
Date: July 26, 2018

A Conversation on Models of Care Delivery for Children with Medical Complexity
Date: June 28, 2018

A Conversation on Meaningful Family Engagement, from Clinical Care to Health Policy
Date: June 6, 2018

A Conversation on the Emergence of Pediatric Complex Care
Date: April 10, 2018

 

 

Publications

Newsletter

Our publications address significant issues and opportunities for change in California’s system of care for children with special health care needs.