The Lucile Packard Foundation for Children’s Health works to ensure that children and youth with special needs will be served by a family-centered system that provides ready access to a comprehensive array of high-quality, coordinated services designed and delivered to efficiently and effectively meet their unique physical, emotional, social and developmental needs. We are pleased to sponsor the March 2018 issue of the PEDIATRICS Supplement: Building Systems that Work for Children with Complex Health Care Needs. These articles help to clarify some of the difficult, systemic issues and challenges affecting health care for these children, and point the way toward their resolution.

Throughout 2018 we will engage in discussions with authors and experts in the field to explore ways we can improve the system of care for children with chronic and complex health care needs. Check back often for updates!

Also See: A recent report from Delaware Health and Social Services on Managing the Health Care Needs of Children with Medical Complexity (PDF).

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A Conversation on Ethical Considerations for a Fair and Effective Health Care System
Date and Time: October 24, 2018 10am-11am PST

What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable trade offs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefiting individual patients and families and securing fair distribution of benefits across populations, to operating in a manner that is transparent and free from conflicts and interests.

Join us for a lively discussion on the article, Ethical Framework for Risk Stratification and Mitigation Programs for Children With Medical Complexity. In this conversation we share recommendations that help ensure programs for children with medical complexity avoid potentially ethically problematic situations and practices. We suggest attendees read the article prior to the event. Audience Q&A is highly encouraged. Attendees can listen via web or phone. Read more.

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UPCOMING CONVERSATIONS

Evolving Federal and State Health Care Policy: Toward a More Integrated and Comprehensive Care-Delivery System for Children with Medical Complexity
Date: November 7, 2018

 

ARCHIVED CONVERSATIONS

A Conversation on Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction
Date: September 20, 2018

A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions
Date: August 22, 2018

A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?
Date: July 26, 2018

A Conversation on Models of Care Delivery for Children with Medical Complexity
Date: June 28, 2018

A Conversation on Meaningful Family Engagement, from Clinical Care to Health Policy
Date: June 6, 2018

A Conversation on the Emergence of Pediatric Complex Care
Date: April 10, 2018

 

 

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Our publications address significant issues and opportunities for change in California’s system of care for children with special health care needs.