“All of the pieces a child needs should operate together.”
Meet Savitri
Savitri lives with cerebral palsy, developmental delays, seizures, and spastic quadriplegia.

Savitri was born at 26 gestational weeks (most pregnancies last 40 weeks). She weighed 1.5 lbs and could fit in Beverly’s hand. 100 lbs and 14 years later, she is too heavy for Beverly to lift. The lift system installed in her bedroom helps move her between her bed and her wheelchair. (Photo: Deanne Fitzmaurice)

In 2016, the Baker family moved from Oakland (population 400,000) to Dunlap, CA (population 131), in the Fresno foothills. “For me, the main thing was gunfire,” Beverly says about Oakland. “Savitri’s nervous system goes haywire when she hears loud sounds.” The nearest school with a special needs program is too far away, so Beverly plans to home-school Savitri. “For the air and the views and the stars, it’s a small price to pay,” she says about their new home. (Photo: Deanne Fitzmaurice)
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Savitri's “care map,” which illustrates the complicated web of medical care and coverage, as well as educational and support services needed for children with medical complexity and their families.