Are you a Super Parent or caregiver of a child with a special health care need (CSHCN)? Join dozens of other families who’ve reached out to us to tell their stories, through words, photos and “care maps,” of what it’s like to care for CSHCN on a daily basis. Many manage appointments with specialists scattered across different hospitals. Others spend hours upon hours negotiating reimbursements for services and equipment. And for so many families, life is often about driving long distances to reach those services. Tell us your story, connect to other families, and help us improve the system of care for CSHCN in America’s most populous state.
In the form on the right, we ask you for a “care map,” which is a powerful way for parents of CSHCN to visually illustrate the complicated web of medical care and coverage, as well as educational and support services needed for their children and their family. Read “Gabe’s Care Map” for more information, and to see an example
All fields with an asterisk are required and will be displayed when we include your story on our web site. Your email address will not be shared, nor will any of the information you provide in the non-required sections of this form.