Last updated: February 18, 2021

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

Complex Child 
COVID-19 Information
Advice on health care and education for families with medically complex children.

Stanford Health Literacy Lab 
Coronavirus Info for Families with Special Health Care Needs
This resource was created in collaboration with families and providers. It offers tips for home, health care settings, schools, and work, as well as advice for coping with family stress. The resource is also available in Spanish.

National Health Law Program and Family Voices of California
Access to Care Through California Children’s Services During COVID-19
This fact sheet answers key questions about access to care through California Children’s Services during COVID-19. It also provides information on free legal assistance. The fact sheet is available in English, Chinese and Spanish.

Sesame Workshop
Sesame Street in Communities
With some of our favorite friends from Sesame Street and insights from early childhood education specialists and community service providers, the website offers tools and tips to families as they face each day with courage, optimism, and hope.

For Caregivers

California Department of Developmental Services
Vaccines & Testing Information
General information about the vaccine for caregivers and families. The website will be updated as additional information becomes available.

National Institute for Children’s Health Quality
Pediatric Telehealth Strategies During and Post (?) the COVID-19 Pandemic
During this webinar health and social service providers learn how to best connect with children and their caregivers during a virtual visit to help ensure families receive the health care they need during and after this pandemic, along with developing best practices for strengthening their relationship with patients using telehealth.

American Academy of Pediatrics
Caring for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic
Provides guidance on reducing the risk of infection and recommendations for creative, flexible, and responsive accommodations for CSHCN and families

Pediatric Nursing
Mental Health Needs During COVID-19: Responses in Pediatric Health Care
This article highlights the profound effect the pandemic is having on children’s mental and emotional health and outlines resources for nurses to share with families.

For State Agencies

National Academy for State Health Policy
State Strategies to Support the Health of Children with Special Needs in School During COVID-19
This article outlines strategies to support the health needs of children with special health care needs who lack access to their usual school-based physical, developmental, and mental health supports. It focuses especially on children of color and those living in poverty or in rural areas with limited access to technology.

State Health & Value Strategies
Supporting Children and Youth with Special Health Care Needs During COVID-19
Webinar speakers share how states can support children and youth with special health care needs during COVID-19. They also discuss regulatory flexibilities that can expand access to services during the pandemic.

Center for Health Care Strategies
Addressing Complex Care Needs Amid COVID-19
The Better Care Playbook provides curated federal guidance related to COVID-19 for people with complex care needs. It also includes resources to help guide complex care programs in adopting new strategies to address COVID-19.

For Advocates

Center for Connected Health Policy
COVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.