Last updated: November 19, 2020

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

Hospital of Richmond at Virginia Commonwealth University
Children's Activity Book on COVID-19
An activity book with kid-friendly information, for children of all ages. Parents can also use the activity book to gauge their children’s feelings about the pandemic.

Complex Child 
COVID-19 Information
Advice on health care and education for families with medically complex children.

Stanford Health Literacy Lab 
Coronavirus Info for Families with Special Health Care Needs
This resource was created in collaboration with families and providers. It offers tips for home, health care settings, schools, and work, as well as advice for coping with family stress. The resource is also available in Spanish.

ACEs Connection
Coping with Stress During the COVID-19 Pandemic
Intended for California families experiencing severe economic consequences resulting from COVID-19, this one-pager shares resources and offers supportive information on ways Californians can take care of themselves and their families during the pandemic. This resource is available in both English and Spanish. 

For Caregivers

American Academy of Pediatrics
Caring for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic
Provides guidance on reducing the risk of infection and recommendations for creative, flexible, and responsive accommodations for CSHCN and families

Children's Hospital of Philadelphia PolicyLab
Ensuring Support Services for Youth with Disabilities and Special Health Care Needs Amid COVID-19
State education leadership, health care providers, and policy experts with lived-experience discuss health and safety protocols for a return to school, how therapies and services could be delivered safely, and what concerns exist around disparities in access.

For State Agencies

California Department of Developmental Service
Coronavirus Information and Resources
This page provides links to general information about COVID-19. Many of the resources are available in multiple languages.

Center for Health Care Strategies
Addressing Complex Care Needs Amid COVID-19
The Better Care Playbook provides curated federal guidance related to COVID-19 for people with complex care needs. It also includes resources to help guide complex care programs in adopting new strategies to address COVID-19.

For Advocates

Center for Connected Health Policy
COVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.

Kaiser Family Foundation
Children’s Health and Well-Being During the Coronavirus Pandemic
This policy brief examines how COVID-related school openings/closures, social distancing, loss of health coverage, and disruptions in medical care could negatively affect the health and well-being of children.