Last updated: June 3, 2020

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

In response to the impact of COVID-19 on children with special health care needs and their families, the Lucile Packard Foundation for Children’s Health has awarded five emergency grants totaling $230,000 to local and national agencies. More information on the COVID-19 grants.

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

National Partnership for Women & Families
Know Your Rights: Emergency Paid Sick Days and Paid Leave for Child Care and Coronavirus 
The Families First Coronavirus Response Act (FFCRA) provides many workers new rights to paid sick time and paid family leave to use for certain coronavirus-related health and family caregiving reasons, including for quarantine and child care. The law contains important paid sick days and paid leave provisions that may help you take care of yourself and your family. The information is also available in Spanish.

Family Voices
COVID-19 Series, April 2020
This three-part series focuses on a variety of topics aimed to support families of children with special health care needs including telehealth and parenting tips. The series is available in English and Spanish.

Complex Child 
COVID-19 Information
Advice on health care and education for families with medically complex children.

For Caregivers

Child Neurology Foundation
Managing Home Healthcare and Access to Medical Supplies During COVID-19
In this video a father of a young adult who requires 24-hour care and a home health provider discuss how care is changing.

Common Sense Media
Wide Open School
Offers families and educators resources on how to support students with disabilities during remote learning.

For State Agencies

Center for Health Care Strategies
Addressing Complex Care Needs Amid COVID-19
The Better Care Playbook provides curated federal guidance related to COVID-19 for people with complex care needs. It also includes resources to help guide complex care programs in adopting new strategies to address COVID-19.

Center for Health Care Strategies
Policy Cheat Sheet Series: Translating COVID-19's Impact on Medicaid Policy
Fact sheets that help clarify the impact of COVID-19 on Medicaid policies.

For Advocates

Center for Connected Health Policy
COVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.

Kidsdata.org
Safeguards for Youth and Responding to COVID-19
As a result of COVID-19, some health and well-being trend lines will pivot in previously unimaginable ways. Learn how we can use data to understand the long-term impacts on California children and protect their well-being.