Last updated: January 7, 2021

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

Hospital of Richmond at Virginia Commonwealth University
Children's Activity Book on COVID-19
An activity book with kid-friendly information, for children of all ages. Parents can also use the activity book to gauge their children’s feelings about the pandemic.

Complex Child 
COVID-19 Information
Advice on health care and education for families with medically complex children.

Stanford Health Literacy Lab 
Coronavirus Info for Families with Special Health Care Needs
This resource was created in collaboration with families and providers. It offers tips for home, health care settings, schools, and work, as well as advice for coping with family stress. The resource is also available in Spanish.

National Health Law Program and Family Voices of California
Access to Care Through California Children’s Services During COVID-19
This fact sheet answers key questions about access to care through California Children’s Services during COVID-19. It also provides information on free legal assistance.

Sesame Workshop
Sesame Street in Communities
With some of our favorite friends from Sesame Street and insights from early childhood education specialists and community service providers, the website offers tools and tips to families as they face each day with courage, optimism, and hope.

For Caregivers

National Institute for Children’s Health Quality
Pediatric Telehealth Strategies During and Post (?) the COVID-19 Pandemic
During this webinar health and social service providers learn how to best connect with children and their caregivers during a virtual visit to help ensure families receive the health care they need during and after this pandemic, along with developing best practices for strengthening their relationship with patients using telehealth.

American Academy of Pediatrics
Caring for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic
Provides guidance on reducing the risk of infection and recommendations for creative, flexible, and responsive accommodations for CSHCN and families

Children's Hospital of Philadelphia PolicyLab
Ensuring Support Services for Youth with Disabilities and Special Health Care Needs Amid COVID-19
State education leadership, health care providers, and policy experts with lived-experience discuss health and safety protocols for a return to school, how therapies and services could be delivered safely, and what concerns exist around disparities in access.

Pediatric Nursing
Mental Health Needs During COVID-19: Responses in Pediatric Health Care
This article highlights the profound effect the pandemic is having on children’s mental and emotional health and outlines resources for nurses to share with families.

For State Agencies

State Health & Value Strategies
Supporting Children and Youth with Special Health Care Needs During COVID-19
Webinar speakers share how states can support children and youth with special health care needs during COVID-19. They also discuss regulatory flexibilities that can expand access to services during the pandemic.

California Department of Developmental Service
Coronavirus Information and Resources
This page provides links to general information about COVID-19. Many of the resources are available in multiple languages.

Center for Health Care Strategies
Addressing Complex Care Needs Amid COVID-19
The Better Care Playbook provides curated federal guidance related to COVID-19 for people with complex care needs. It also includes resources to help guide complex care programs in adopting new strategies to address COVID-19.

For Advocates

Center for Connected Health Policy
COVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.