Last updated: July 22, 2021

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

National Health Law Program and Family Voices of California
Access to Care Through California Children’s Services During COVID-19
This fact sheet answers key questions about access to care through California Children’s Services during COVID-19. It also provides information on free legal assistance. The fact sheet is available in English, Chinese and Spanish.

For Caregivers

Boston Children's Hospital and Children and Youth with Special Health Care Needs National Research Network
Prevalence of Risk Factors for Severe COVID-19 Disease: Implications for Children and Youth with Special Health Care Needs
A report on the at-risk health conditions in CSHCN, including how the conditions are being used to prioritize vaccine distribution, how to identify the conditions using health care claims, and how estimating the prevalence of these conditions can help ensure that children and youth receive the care they need during the pandemic.

National Association of Councils on Developmental Disabilities
Get Out the Vaccine
Information to help people with disabilities and their families make decisions about being vaccinated for COVID-19

California Department of Developmental Services
Vaccines & Testing Information
General information about the vaccine for caregivers and families. The website will be updated as additional information becomes available.

Ensuring the Success of Students with Disabilities Through the Pandemic
Guidance for administrators at both the school and district level who are responsible for managing distance learning for students with disabilities

American Academy of Pediatrics
Caring for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic
Provides guidance on reducing the risk of infection and recommendations for creative, flexible, and responsive accommodations for CSHCN and families

Pediatric Nursing
Mental Health Needs During COVID-19: Responses in Pediatric Health Care
This article highlights the profound effect the pandemic is having on children’s mental and emotional health and outlines resources for nurses to share with families.

Stanford Pediatrics
COVID-19 in Children Seminar Series
This forum is focused on the pediatric population and surrounding community. Sessions include a rigorous review of recent literature and promotes an enhanced understanding of key concepts and recommended actions to help providers, community members, school leaders, parents, and others navigate the ongoing pandemic. 

For State Agencies

National Center for Learning Disabilities
Promising Practices to Accelerate Learning for Students with Disabilities During COVID-19 and Beyond
This brief explores several research-based models that accelerate learning and improve outcomes for students, and highlights important state and federal considerations for historically marginalized student populations, especially students with disabilities.

Health Management Associates
COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs
This report identifies key policy flexibilities enacted during the public health emergency and summarizes stakeholders’ perspectives about the impact of the flexibilities on CYSHCN and their families and providers.

For Advocates

Center for Connected Health Policy
COVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.