Last updated: September 9, 2021

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

American Academy of Pediatrics
Back to School for Quirky Kids Webinar
As children with developmental differences return to in-person learning, parents will face many issues in supporting them through the transition. Pediatricians address how to seek support in assessing lost learning time, how to help the re-entry process for a child with social anxiety who has spent more than a year at home, and how to prepare a child for the routine which may feel entirely new.

National Health Law Program and Family Voices of California
Access to Care Through California Children’s Services During COVID-19
This fact sheet answers key questions about access to care through California Children’s Services during COVID-19. It also provides information on free legal assistance. The fact sheet is available in English, Chinese and Spanish.

For Caregivers

Centers for Disease Control and Prevention
COVID-19 Materials for People with Intellectual and Developmental Disabilities and Care Providers
The materials on this page were created to help make communicating about COVID-19 a little easier. Choose from videos, posters, social stories, and interactive activities to best meet your communication needs. The materials are also available in Spanish.

Stanford Pediatrics
COVID-19 in Children Seminar Series
This forum is focused on the pediatric population and surrounding community. Sessions include a rigorous review of recent literature and promotes an enhanced understanding of key concepts and recommended actions to help providers, community members, school leaders, parents, and others navigate the ongoing pandemic. 

National Association of Councils on Developmental Disabilities
Get Out the Vaccine
Information to help people with disabilities and their families make decisions about being vaccinated for COVID-19

Boston Children's Hospital and Children and Youth with Special Health Care Needs National Research Network
Prevalence of Risk Factors for Severe COVID-19 Disease: Implications for Children and Youth with Special Health Care Needs
A report on the at-risk health conditions in CSHCN, including how the conditions are being used to prioritize vaccine distribution, how to identify the conditions using health care claims, and how estimating the prevalence of these conditions can help ensure that children and youth receive the care they need during the pandemic.

American Academy of Pediatrics
Caring for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic
Provides guidance on reducing the risk of infection and recommendations for creative, flexible, and responsive accommodations for CSHCN and families

Pediatric Nursing
Mental Health Needs During COVID-19: Responses in Pediatric Health Care
This article highlights the profound effect the pandemic is having on children’s mental and emotional health and outlines resources for nurses to share with families.

For State Agencies

Health Management Associates
COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs
This report identifies key policy flexibilities enacted during the public health emergency and summarizes stakeholders’ perspectives about the impact of the flexibilities on CYSHCN and their families and providers.

For Advocates

Center for Connected Health Policy
Telehealth in the time of COVID-19
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.