Last updated: July 8, 2020

The following COVID-19 resources offer information for families, caregivers, state agencies, and advocates of children or specifically children with special health care needs. Links are regularly updated.  

In response to the impact of COVID-19 on children with special health care needs and their families, the Lucile Packard Foundation for Children’s Health has awarded five emergency grants totaling $230,000 to local and national agencies. More information on the COVID-19 grants.

For Families

Centers for Disease Control and Prevention
Coronavirus Disease 2019 (COVID-19) Frequently Asked Questions: Children with Special Health Care Needs
Basic information on COVID-19 and how to support children and families.

National Partnership for Women & Families
Know Your Rights: Emergency Paid Sick Days and Paid Leave for Child Care and Coronavirus 
The Families First Coronavirus Response Act (FFCRA) provides many workers new rights to paid sick time and paid family leave to use for certain coronavirus-related health and family caregiving reasons, including for quarantine and child care. The law contains important paid sick days and paid leave provisions that may help you take care of yourself and your family. The information is also available in Spanish.

Complex Child 
COVID-19 Information
Advice on health care and education for families with medically complex children.

Child Neurology Foundation 
The Impact of Lost Therapy Services During COVID-19 and What Parents Can Do in the Interim
An educational consultant and special education advocate discusses setting expectations about maintaining ground during the pandemic; how parents can prioritize which skills to focus on; and ways parents can work with their current therapists to integrate therapy into daily life.

For Caregivers

Center for Health Care Strategies
Supporting Family Caregivers in the Time of COVID-19: State Strategies
A discussion on the strains family caregivers face and strategies states could employ to support them.

Centers for Disease Control and Prevention
Guidance for Direct Service Providers
Guidance for direct service providers, including personal care attendants, direct support professionals, paraprofessionals, therapists, and others. Learn how to protect yourself at work and what to do if a client shows symptoms of COVID-19. 

For State Agencies

California Department of Developmental Service
Coronavirus Information and Resources
This page provides links to general information about COVID-19. Many of the resources are available in multiple languages.

Center for Health Care Strategies
Addressing Complex Care Needs Amid COVID-19
The Better Care Playbook provides curated federal guidance related to COVID-19 for people with complex care needs. It also includes resources to help guide complex care programs in adopting new strategies to address COVID-19.

Center for Health Care Strategies
Policy Cheat Sheet Series: Translating COVID-19's Impact on Medicaid Policy
Fact sheets that help clarify the impact of COVID-19 on Medicaid policies.

For Advocates

Center for Connected Health Policy
COVID-19 Related State Actions
Up-to-date information on how the federal government and each state are adjusting their policies to address the need to make telehealth more available.