Improving Home-Based Pediatric Palliative Care for Children
Pediatric palliative care is often misunderstood as end-of-life care. In fact, it is a set of mostly hospital-based services to ease suffering and promote well-being at any stage of serious illness. There are only eight hospital-based pediatric palliative care programs in California, and a troubling shortage of providers. This grant to Children’s Hospital of Los Angeles will support creation of a protocol for the implementation and evaluation of a model for home-based pediatric palliative care that would be provided via telehealth technology. A comprehensive description of the model and its key components, as well as implementation resources and evaluation tools needed to pilot test the model, will be developed.