Care Coordination

National Care Coordination Standards for Children and Youth with Special Health Care Needs


National Academy for State Health Policy

Primary Contact

Karen VanLandeghem

Grant Amount

$286,759 for 18 months

Date Awarded

October 2018


Currently there are no widely accepted national care coordination standards for children with complex conditions. A grant to the National Academy for State Health Policy will launch a process to develop such standards, beginning with a literature review, key informant interviews, and convening of a National Work Group to generate and refine standards.


An in-depth, data driven process was undertaken to develop National Care Coordination Standards for children with complex medical conditions. The Care Coordination Standards were released in October of 2020 with more than 7,000 downloads of the materials in the first month of release. An accompanying blog, national webinar, and conference session were produced to disseminate the Care Coordination Standards. A next phase of work includes the writing of a journal article on the Standards, as well as the development of implementation tools that cover key issues, including quality measurement and financing.

Related Publications