National Care Coordination Standards for Children and Youth with Special Health Care Needs
Currently there are no widely accepted national care coordination standards for children with complex conditions. A grant to the National Academy for State Health Policy will launch a process to develop such standards, beginning with a literature review, key informant interviews, and convening of a National Work Group to generate and refine standards.
An in-depth, data driven process was undertaken to develop National Care Coordination Standards for children with complex medical conditions. The Care Coordination Standards were released in October of 2020 with more than 7,000 downloads of the materials in the first month of release. An accompanying blog, national webinar, and conference session were produced to disseminate the Care Coordination Standards. A next phase of work includes the writing of a journal article on the Standards, as well as the development of implementation tools that cover key issues, including quality measurement and financing.
Other Grants Awarded to National Academy for State Health Policy
- Advancing National Standards for Children and Youth with Special Health Care Needs
- National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs, Phase V
- National Consensus Framework for Improving Quality Systems of Care for Children with Special Health Care Needs, Phase IV
- Improving Systems of Care for Children with Medical Complexity through Medicaid Quality Measurement Initiatives
- How State Medicaid Managed Care Programs Are Addressing the Unique Needs of Children with Chronic and Complex Health Conditions
- Strengthening Medicaid and CHIP Programs to Serve CSHCN
- Identifying and Assessing CSHCN: Lessons for States Transitioning to Medicaid Managed Care