Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)
The U.S. health care system is not well equipped to serve children and youth with special health care needs. With federal funding, the CYSHCN National Research Network has identified six problems in the system as high-priority areas for research. This award will support development of a national research agenda to encourage funders, advocates, and researchers to address those areas. The grantees will publish several peer-reviewed articles in a supplement to Academic Pediatrics, followed by family-friendly versions of the articles. They also will disseminate the research agenda through a webinar series and presentations at national conferences.
A National Health Systems Research Agenda for Children and Youth With Special Health Care Needs: Supplement to Academic Pediatrics
A Family-Centered Research Agenda for Improving Health Care Transitions for Children with Special Health Care Needs
A Family-Centered Research Agenda for Supporting Caregivers of Children with Special Health Care Needs