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Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Organization: University of Colorado Denver

Primary Contact: Christopher Stille

Grant Amount: $98,762 for 15 months

Date Awarded:

Date Completed:

Purpose

The U.S. health care system is not well equipped to serve children and youth with special health care needs. With federal funding, the CYSHCN National Research Network has identified six problems in the system as high-priority areas for research. This award will support development of a national research agenda to encourage funders, advocates, and researchers to address those areas. The grantees will publish several peer-reviewed articles in a supplement to Academic Pediatrics, followed by family-friendly versions of the articles. They also will disseminate the research agenda through a webinar series and presentations at national conferences.

Related Resources

A National Health Systems Research Agenda for Children and Youth With Special Health Care Needs: Supplement to Academic Pediatrics

A national group of researchers and family leaders aim to improve the system of care for children and youth with special health care needs (CYSHCN) through the establishment of a family-centered national research agenda. This supplement to Academic Pediatrics provides a blueprint of research priorities that address health outcomes and the well-being of CYSHCN.

A Family-Centered Research Agenda for Improving Health Care Transitions for Children with Special Health Care Needs

In this webinar, authors discuss their article titled Improving Health Care Transitions for Children and Youth with Special Health Care Needs. Speakers highlight the health care transition process for adolescents and young adults with special health care needs, describe study findings, and reflect on the implications of their recommendations.

A Family-Centered Research Agenda for Supporting Caregivers of Children with Special Health Care Needs

Researchers and family leaders from across the country partnered to develop a national research agenda focused on improving the health care system for children and youth with special health care needs. This webinar focuses on research priorities in caregiving for children with special health care needs.

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