COVID-19 Public Health Emergency (PHE) Unwinding Resources

Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Systems and Standards

Pediatric-to-Adult Health Care Transition Quality Measurement

Organization:
National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $50,000 for 12 months

Awarded: November 2020
Related Publications:
- Quality Measurement Gaps in Pediatric-To-Adult Health Care Transition in the United States: A Framework to Guide Development of New Measures
Systems and Standards

Advancing a Family-Centered Evidence-Base for Pediatric Home Health Care

Organization:
Ann & Robert H. Lurie Children's Hospital of Chicago

Primary Contact: Carolyn Foster and Cara Coleman

Grant Amount: $196,832 for 24 months

Awarded: July 2020
Related Publications:
Systems and Standards

Assessing Trends of COVID-19-related Health System Changes with Implications for Children and Youth with Special Health Care Needs

Organization:
Health Management Associates

Primary Contact: Sharon Silow-Carroll

Grant Amount: $230,000 for 11 months

Awarded: June 2020
Related Publications:
- COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs
Systems and Standards

Advancing National Standards for Children and Youth with Special Health Care Needs

Organization:
National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $262,601 for 18 months

Awarded: June 2020
Related Publications:
- National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN) Implementation Guide
- Proceedings from the National Forum on Care Coordination for CYSHCN
Systems and Standards

From Assessing Needs to Taking Action

Organization:
Regents of the University of California San Francisco

Primary Contact: Jennifer Rienks

Grant Amount: $55,699 for 12 months

Awarded: June 2020
Related Publications:
- California Children’s Services Needs Assessment: Looking Back to Move Forward
Systems and Standards

Strengthening the System of Care and Accountability for Children with Special Health Care Needs During the COVID-19 Crisis

Organization:
Manatt Health Solutions

Primary Contact: Cindy Mann

Grant Amount: $50,000 for 13 months

Awarded: May 2020
Related Publications:
- Supporting Children and Youth with Special Health Care Needs During COVID-19
Systems and Standards

California-based Nurse-led Discharge Learning (CANDLE) Collaborative - Phase II

Organization:
Children's Hospital Los Angeles

Primary Contact: Kevin Blaine

Grant Amount: $296,596 for 24 months

Awarded: October 2019
Systems and Standards

Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Organization:
University of Colorado Denver

Primary Contact: Christopher Stille

Grant Amount: $98,762 for 15 months

Awarded: October 2019
Related Publications:
Systems and Standards

Children’s Regional Integrated Service System (CRISS) Activities Addressing California Children’s Services Whole Child Model Implementation

Organization:
Lucile Packard Children’s Hospital Stanford

Primary Contact: Laurie Soman

Grant Amount: $62,959 for 24 months

Awarded: October 2019
Related Publications:
- California Children’s Services Whole Child Model Implementation
Systems and Standards

Improving Home-Based Pediatric Palliative Care for Children

Organization:
Children's Hospital Los Angeles

Primary Contact: Debra Lotstein

Grant Amount: $158,030 for 18 months

Awarded: June 2019
Related Publications:
- Telemedicine and Pediatric Home-based Palliative Care: Next Steps for Policy and Practice in California

Grants Awarded

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Pediatric-to-Adult Health Care Transition Quality Measurement

Advancing a Family-Centered Evidence-Base for Pediatric Home Health Care

Assessing Trends of COVID-19-related Health System Changes with Implications for Children and Youth with Special Health Care Needs

Advancing National Standards for Children and Youth with Special Health Care Needs

From Assessing Needs to Taking Action

Strengthening the System of Care and Accountability for Children with Special Health Care Needs During the COVID-19 Crisis

California-based Nurse-led Discharge Learning (CANDLE) Collaborative - Phase II

Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Children’s Regional Integrated Service System (CRISS) Activities Addressing California Children’s Services Whole Child Model Implementation

Improving Home-Based Pediatric Palliative Care for Children

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