Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Organization

Systems and Standards

Addressing Clinical Challenges in the Care of Children with Neurodisability and Medical Complexity

Organization:
Hospital for Sick Children (SickKids)

Primary Contact: Eyal Cohen

Grant Amount: $64,666 for 12 months

Awarded: May 2021
Related Publications:
- Knowledge Gaps in the Care of Children with Medical Complexity and Neurodisability
Other

Media Coverage of Children with Special Health Care Needs in California

Organization:
California Health Report

Primary Contact: Hannah Guzik

Grant Amount: $150,000 for 24 months

Awarded: February 2021
Care Coordination

Promoting Telehealth to Address Barriers to Care for Children of Color with Special Health Care Needs in California

Organization:
The Children’s Partnership

Primary Contact: Mayra E Alvarez

Grant Amount: $100,000 for 12 months

Awarded: February 2021
Systems and Standards

Pediatric Intensive Care Unit Continuity Strategies Conference and Guidelines Formulation

Organization:
Columbia University Medical Center

Primary Contact: Jeffrey Edwards

Grant Amount: $155,636 for 12 months

Awarded: February 2021
Family Engagement

The AFFIRM 2021 Study (Assessing Family-Friendly Care in Self-Management)

Organization:
Regents of the University of California San Francisco

Primary Contact: Rachel Willard-Grace

Grant Amount: $249,400 for 21 months

Awarded: February 2021
Systems and Standards

Pediatric-to-Adult Health Care Transition Quality Measurement

Organization:
National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $50,000 for 12 months

Awarded: November 2020
Related Publications:
- Recommendations for Value-Based Transition Payment for Pediatric and Adult Health Care Systems
Family Engagement

Parenting in the Context of COVID-19

Organization:
YouGov America Inc.

Primary Contact: Ashley Grosse

Grant Amount: $50,000 for 6 months

Awarded: October 2020
Care Coordination

COVID-19 Policy Issuance and Clarity in the California Children’s Services Program

Organization:
National Health Law Program

Primary Contact: Alicia Emanuel

Grant Amount: $50,000 for 6 months

Awarded: October 2020
Related Publications:
- Access to Care Through California Children’s Services During COVID-19
Family Engagement

Best Practices for Engaging Patient, Youth, & Family Leaders as Research Partners

Organization:
University of Colorado Denver

Primary Contact: Charlene Shelton

Grant Amount: $122,195 for 18 months

Awarded: October 2020
Family Engagement

Project Leadership Coordination and Expansion, COVID-19 Supplement

Organization:
Family Voices of California

Primary Contact: Pip Marks

Grant Amount: $49,898 for 7 months

Awarded: October 2020

Grants Awarded

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Addressing Clinical Challenges in the Care of Children with Neurodisability and Medical Complexity

Media Coverage of Children with Special Health Care Needs in California

Promoting Telehealth to Address Barriers to Care for Children of Color with Special Health Care Needs in California

Pediatric Intensive Care Unit Continuity Strategies Conference and Guidelines Formulation

The AFFIRM 2021 Study (Assessing Family-Friendly Care in Self-Management)

Pediatric-to-Adult Health Care Transition Quality Measurement

Parenting in the Context of COVID-19

COVID-19 Policy Issuance and Clarity in the California Children’s Services Program

Best Practices for Engaging Patient, Youth, & Family Leaders as Research Partners

Project Leadership Coordination and Expansion, COVID-19 Supplement

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