Grants Awarded

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Awarded: June 2019

Evaluation of the Use and Impact of National Standards for Systems of Care for Children and Youth with Special Health Care Needs

Primary Contact: Douglas McCarthy

Organization:
Issues Research

$50,000 for 7 months
Awarded: March 2019

Equitable Funding for Children with Developmental Disabilities: Phase 3

Principal Investigator: Brian Capra

Organization:
Public Counsel

$135,000 for 18 months
Awarded: March 2019

Paying for the Transition from Pediatric to Adult Health Care: Phase 2

Principal Investigator: Peggy McManus

Organization:
The National Alliance to Advance Adolescent Health

$133,572 for 21 months
Awarded: March 2019

Health Complexity Indicators to Guide and Inform Policy, System- and Practice-Level Efforts: Supporting and Learning from Efforts in Oregon

Primary Contact: Colleen Reuland

Organization:
Oregon Pediatric Improvement Partnership

$166,608 for 24 months
Awarded: October 2018

Parent Leadership Coordination and Expansion

Principal Investigator: Elaine Linn

Organization:
Family Voices of California

$455,174 for 24 months
Awarded: October 2018

National Care Coordination Standards for Children and Youth with Special Health Care Needs

Principal Investigator: Karen VanLandeghem

Organization:
Center for Health Policy Development (NASHP)

$286,759 for 18 months
Awarded: October 2018

Improving Access to Durable Medical Equipment in the California Children’s Services Program

Principal Investigator: Michelle Lilienfeld

Organization:
National Health Law Program

$30,000 for 12 months
Publication:
- Helping Families Obtain Durable Medical Equipment and Supplies Through the California Children's Services (CCS) Program
Awarded: October 2018

Creating Parent Mentor/Self-Management Training Center for Pediatric Health Settings

Principal Investigator: Karen Wayman

Organization:
Lucile Packard Children’s Hospital Stanford

$197,026 for 24 months
Publication:
- Five Top Tips for Engaging Families in Advisory Roles: Advice from a Family Leader
Awarded: October 2018

Self-Management Supports for Children with Special Health Care Needs

Principal Investigator: Tali Klima

Organization:
SRI International

$69,589 for 5 months
Awarded: October 2018

Phase V - National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs

Principal Investigator: Karen VanLandeghem

Organization:
Center for Health Policy Development (NASHP)

$165,338 for 18 months

Grants Awarded

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