Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Media Coverage on the Impacts of COVID-19 and Children with Special Health Care Needs

Organization:
California Health Report

Primary Contact: Hannah Guzik

Grant Amount: $30,000 for 7 months

Awarded: May 2020
Systems and Standards

California-based Nurse-led Discharge Learning (CANDLE) Collaborative - Phase II

Organization:
Children's Hospital Los Angeles

Primary Contact: Kevin Blaine

Grant Amount: $296,596 for 24 months

Awarded: October 2019
Care Coordination

Orange County Care Coordination Collaborative for Kids: Access to Care for CSHCN

Organization:
Children's Hospital of Orange County Foundation

Primary Contact: Rebecca Hernandez

Grant Amount: $77,332 for 24 months

Awarded: October 2019
Care Coordination

Improving Access to Durable Medical Equipment and Supplies Through the California Children's Services Program – Phase II

Organization:
National Health Law Program

Primary Contact: Michelle Lilienfeld

Grant Amount: $102,500 for 12 months

Awarded: October 2019

Related Publication: Helping Families Obtain Durable Medical Equipment and Supplies Through the California Children’s Services (CCS) Program - Updated
Family Engagement

A National Study of Patient and Family Advisory Councils in U.S. Children's Hospitals

Organization:
Institute for Patient- and Family-Centered Care

Primary Contact: Pam Dardess

Grant Amount: $249,848 for 18 months

Awarded: October 2019
Systems and Standards

Children’s Regional Integrated Service System (CRISS) Activities Addressing California Children’s Services Whole Child Model Implementation

Organization:
Lucile Packard Children’s Hospital Stanford

Primary Contact: Laurie Soman

Grant Amount: $62,959 for 24 months

Awarded: October 2019

Related Publication: California Children’s Services Whole Child Model Implementation
Systems and Standards

Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Organization:
University of Colorado Denver

Primary Contact: Christopher Stille

Grant Amount: $98,762 for 15 months

Awarded: October 2019
Family Engagement

Assessment Tool Dissemination and Technical Assistance to Improve Family Engagement in Agencies and Organizations

Organization:
Family Voices

Primary Contact: Nora Wells

Grant Amount: $174,334 for 18 months

Awarded: June 2019
Family Engagement

Family Engagement in Medicaid: A 50-state Scan of Efforts to Meaningfully Engage CSHCN Families in Medical Policymaking

Organization:
Center for Health Care Strategies

Primary Contact: Courtney Roman

Grant Amount: $127,135 for 18 months

Awarded: June 2019

Related Publication: Engaging Youth with Special Health Care Needs and Families of Children with Special Health Care Needs: Recommendations for Medicaid Agencies
Systems and Standards

Improving Home-Based Pediatric Palliative Care for Children

Organization:
Children's Hospital Los Angeles

Primary Contact: Debra Lotstein

Grant Amount: $158,030 for 18 months

Awarded: June 2019

Related Publication: Telemedicine and Pediatric Home-based Palliative Care: Next Steps for Policy and Practice in California

Grants Awarded

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Media Coverage on the Impacts of COVID-19 and Children with Special Health Care Needs

California-based Nurse-led Discharge Learning (CANDLE) Collaborative - Phase II

Orange County Care Coordination Collaborative for Kids: Access to Care for CSHCN

Improving Access to Durable Medical Equipment and Supplies Through the California Children's Services Program – Phase II

A National Study of Patient and Family Advisory Councils in U.S. Children's Hospitals

Children’s Regional Integrated Service System (CRISS) Activities Addressing California Children’s Services Whole Child Model Implementation

Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Assessment Tool Dissemination and Technical Assistance to Improve Family Engagement in Agencies and Organizations

Family Engagement in Medicaid: A 50-state Scan of Efforts to Meaningfully Engage CSHCN Families in Medical Policymaking

Improving Home-Based Pediatric Palliative Care for Children

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