COVID-19 Public Health Emergency (PHE) Unwinding Resources

Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Organization

Systems and Standards

Oversight and Monitoring of the California's Children's Services Program

Organization:
National Health Law Program

Primary Contact: Alicia Emanuel

Grant Amount: $155,000 for 18 months

Awarded: November 2021
Systems and Standards

Development of a Transition Task Force for Pediatric Palliative Care Coalition in California

Organization:
Jacob's Heart Children's Cancer Support Services

Primary Contact: Christy Torkildson

Grant Amount: $50,000 for 7 months

Awarded: July 2021
Family Engagement

Project Leadership Engaging Diverse Families for Health Systems Improvement: Phase VI

Organization:
Family Voices of California

Primary Contact: Jim Welsh

Grant Amount: $473,455 for 24 months

Awarded: June 2021
Systems and Standards

Addressing Clinical Challenges in the Care of Children with Neurodisability and Medical Complexity

Organization:
Hospital for Sick Children (SickKids)

Primary Contact: Eyal Cohen

Grant Amount: $64,666 for 12 months

Awarded: May 2021
Related Publications:
- Knowledge Gaps in the Care of Children with Medical Complexity and Neurodisability
- Family Partnership in Continuing Medical Education: A Collaborative Experience
Other

Media Coverage of Children with Special Health Care Needs in California

Organization:
California Health Report

Primary Contact: Hannah Guzik

Grant Amount: $150,000 for 24 months

Awarded: February 2021
Family Engagement

The AFFIRM 2021 Study (Assessing Family-Friendly Care in Self-Management)

Organization:
Regents of the University of California San Francisco

Primary Contact: Rachel Willard-Grace

Grant Amount: $249,400 for 21 months

Awarded: February 2021
Care Coordination

Promoting Telehealth to Address Barriers to Care for Children of Color with Special Health Care Needs in California

Organization:
The Children’s Partnership

Primary Contact: Mayra E Alvarez

Grant Amount: $100,000 for 12 months

Awarded: February 2021
Related Publications:
- Telehealth and Children of Color with Special Health Care Needs: Lessons from the Pandemic
Systems and Standards

Pediatric Intensive Care Unit Continuity Strategies Conference and Guidelines Formulation

Organization:
Columbia University Medical Center

Primary Contact: Jeffrey Edwards

Grant Amount: $155,636 for 12 months

Awarded: February 2021
Related Publications:
- Continuity Strategies for Long-Stay PICU Patients: Consensus Statements from the Lucile Packard Foundation PICU Continuity Panel
Systems and Standards

Pediatric-to-Adult Health Care Transition Quality Measurement

Organization:
National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $50,000 for 12 months

Awarded: November 2020
Related Publications:
- Quality Measurement Gaps in Pediatric-To-Adult Health Care Transition in the United States: A Framework to Guide Development of New Measures
Family Engagement

Parenting in the Context of COVID-19

Organization:
YouGov America Inc.

Primary Contact: Ashley Grosse

Grant Amount: $50,000 for 6 months

Awarded: October 2020

Grants Awarded

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Oversight and Monitoring of the California's Children's Services Program

Development of a Transition Task Force for Pediatric Palliative Care Coalition in California

Project Leadership Engaging Diverse Families for Health Systems Improvement: Phase VI

Addressing Clinical Challenges in the Care of Children with Neurodisability and Medical Complexity

Media Coverage of Children with Special Health Care Needs in California

The AFFIRM 2021 Study (Assessing Family-Friendly Care in Self-Management)

Promoting Telehealth to Address Barriers to Care for Children of Color with Special Health Care Needs in California

Pediatric Intensive Care Unit Continuity Strategies Conference and Guidelines Formulation

Pediatric-to-Adult Health Care Transition Quality Measurement

Parenting in the Context of COVID-19

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