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Packard Children's response and ways to help Resources for Children with Special Health Care Needs

Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Organization

Systems and Standards

Evaluation of the Use and Impact of National Standards for Systems of Care for Children and Youth with Special Health Care Needs

Organization:
Issues Research

Primary Contact: Douglas McCarthy

Grant Amount: $50,000 for 7 months

Awarded: June 2019
Related Publications:
- Assessing the Influence of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs
Systems and Standards

Equitable Funding for Children with Developmental Disabilities: Phase 3

Organization:
Public Counsel

Primary Contact: Brian Capra

Grant Amount: $135,000 for 18 months

Awarded: March 2019
Related Publications:
- Confronting Inequities in California’s Funding of Services for Children with Developmental Disabilities: A Sobering View of Our Current Standpoint
Care Coordination

Paying for the Transition from Pediatric to Adult Health Care

Organization:
National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $133,572 for 21 months

Awarded: March 2019
Related Publications:
- A Guide for Designing a Value-Based Payment Initiative for Pediatric-to-Adult Transitional Care
- Medicaid Managed Care Contract Language to Expand the Availability of Pediatric-to-Adult Transitional Care
Systems and Standards

Health Complexity Indicators to Guide and Inform Policy, System- and Practice-Level Efforts: Supporting and Learning from Efforts in Oregon

Organization:
Oregon Pediatric Improvement Partnership

Primary Contact: Colleen Reuland

Grant Amount: $166,608 for 24 months

Awarded: March 2019
Related Publications:
- Oregon’s Approach to Leveraging System-level Data to Guide a Social Determinants of Health-informed Approach to Children’s Healthcare
Systems and Standards

Whole Child Model Family Advisory Case Study

Organization:
Davis Health Strategies

Primary Contact: Caroline Davis

Awarded: December 2018
Related Publications:
- Family Engagement and California’s Whole Child Model: Lessons Learned from the Implementation of Family Advisory Committees
Care Coordination

National Care Coordination Standards for Children and Youth with Special Health Care Needs

Organization:
National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $286,759 for 18 months

Awarded: October 2018
Related Publications:
- National Care Coordination Standards for Children and Youth with Special Health Care Needs
Family Engagement

Project Leadership Coordination and Expansion: Phase V

Organization:
Family Voices of California

Primary Contact: Elaine Linn

Grant Amount: $455,174 for 24 months

Awarded: October 2018
Systems and Standards

National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs, Phase V

Organization:
National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $165,338 for 18 months

Awarded: October 2018
Related Publications:
- National Standards for Systems of Care for Children and Youth with Special Health Care Needs: Domain Overviews
Family Engagement

Analysis of Family Engagement in California's Policymaking

Organization:
Children Now

Primary Contact: Kelly Hardy

Grant Amount: $15,000 for 12 months

Awarded: October 2018
Systems and Standards

Ensuring that Children with Special Health Care Needs Have Access to Needed Medicaid Services

Organization:
Manatt Health Solutions

Primary Contact: Cindy Mann

Grant Amount: $50,000 for 6 months

Awarded: October 2018
Related Publications:
- Keeping Medicaid’s Promise: Strengthening Access to Services for Children with Special Healthcare Needs

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