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Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Care Coordination

Improving Access to Durable Medical Equipment and Supplies Through the California Children's Services Program – Phase II

Organization:
National Health Law Program

Primary Contact: Michelle Lilienfeld

Grant Amount: $102,500 for 12 months

Awarded: October 2019
Related Publications:
- Helping Families Obtain Durable Medical Equipment and Supplies Through the California Children’s Services (CCS) Program - Updated
Family Engagement

A National Study of Patient and Family Advisory Councils in U.S. Children's Hospitals

Organization:
Institute for Patient- and Family-Centered Care

Primary Contact: Pam Dardess

Grant Amount: $249,848 for 18 months

Awarded: October 2019
Related Publications:
- Key Learnings for Strengthening Partnerships: Recommendations from a National Study of Patient and Family Advisory Councils in U.S. Children’s Hospitals
- Adapting and Responding to a Pandemic: Patient and Family Advisory Councils in Children's Hospitals during COVID-19
Systems and Standards

Children’s Regional Integrated Service System (CRISS) Activities Addressing California Children’s Services Whole Child Model Implementation

Organization:
Lucile Packard Children’s Hospital Stanford

Primary Contact: Laurie Soman

Grant Amount: $62,959 for 24 months

Awarded: October 2019
Related Publications:
- California Children’s Services Whole Child Model Implementation
Systems and Standards

Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Organization:
University of Colorado Denver

Primary Contact: Christopher Stille

Grant Amount: $98,762 for 15 months

Awarded: October 2019
Related Publications:
Family Engagement

Assessment Tool Dissemination and Technical Assistance to Improve Family Engagement in Agencies and Organizations

Organization:
Family Voices

Primary Contact: Nora Wells

Grant Amount: $174,334 for 18 months

Awarded: June 2019
Related Publications:
- The Family Voices Family Engagement in Systems Assessment Tools: Case Studies to Highlight Three Uses of the Tools
- Using the Family Engagement in Systems Assessment Tool: A Real World Example
Family Engagement

Family Engagement in Medicaid: A 50-state Scan of Efforts to Meaningfully Engage CSHCN Families in Medical Policymaking

Organization:
Center for Health Care Strategies

Primary Contact: Courtney Roman

Grant Amount: $127,135 for 18 months

Awarded: June 2019
Related Publications:
- Engaging Youth with Special Health Care Needs and Families of Children with Special Health Care Needs: Recommendations for Medicaid Agencies
Systems and Standards

Improving Home-Based Pediatric Palliative Care for Children

Organization:
Children's Hospital Los Angeles

Primary Contact: Debra Lotstein

Grant Amount: $158,030 for 18 months

Awarded: June 2019
Related Publications:
- Telemedicine and Pediatric Home-based Palliative Care: Next Steps for Policy and Practice in California
Systems and Standards

Improving Health Care for Individuals with Developmental Disabilities within a Federally Qualified Health Center

Organization:
The Achievable Foundation

Primary Contact: Ida Diab

Grant Amount: $25,000 for 12 months

Awarded: June 2019
Related Publications:
- The Achievable Foundation: A Case Study
Systems and Standards

Evaluation of the Use and Impact of National Standards for Systems of Care for Children and Youth with Special Health Care Needs

Organization:
Issues Research

Primary Contact: Douglas McCarthy

Grant Amount: $50,000 for 7 months

Awarded: June 2019
Related Publications:
- Assessing the Influence of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs
- The Influence of National Standards on Medicaid Managed Care Programs: Implications for Children and Youth with Special Health Care Needs
Systems and Standards

Equitable Funding for Children with Developmental Disabilities: Phase 3

Organization:
Public Counsel

Primary Contact: Brian Capra

Grant Amount: $135,000 for 18 months

Awarded: March 2019
Related Publications:
- Confronting Inequities in California’s Funding of Services for Children with Developmental Disabilities: A Sobering View of Our Current Standpoint

Grants Awarded

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Improving Access to Durable Medical Equipment and Supplies Through the California Children's Services Program – Phase II

A National Study of Patient and Family Advisory Councils in U.S. Children's Hospitals

Children’s Regional Integrated Service System (CRISS) Activities Addressing California Children’s Services Whole Child Model Implementation

Publishing and Disseminating A National Research Agenda for Children and Youth with Special Health Care Needs (CYSHCN)

Assessment Tool Dissemination and Technical Assistance to Improve Family Engagement in Agencies and Organizations

Family Engagement in Medicaid: A 50-state Scan of Efforts to Meaningfully Engage CSHCN Families in Medical Policymaking

Improving Home-Based Pediatric Palliative Care for Children

Improving Health Care for Individuals with Developmental Disabilities within a Federally Qualified Health Center

Evaluation of the Use and Impact of National Standards for Systems of Care for Children and Youth with Special Health Care Needs

Equitable Funding for Children with Developmental Disabilities: Phase 3

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