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Grants Awarded

We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. Browse our online database of active and completed grants.

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Systems and Standards

Improving Home-Based Pediatric Palliative Care for Children

Organization:
Children's Hospital Los Angeles

Primary Contact: Debra Lotstein

Grant Amount: $158,030 for 18 months

Awarded: June 2019
Related Publications:
- Telemedicine and Pediatric Home-based Palliative Care: Next Steps for Policy and Practice in California
Systems and Standards

Improving Health Care for Individuals with Developmental Disabilities within a Federally Qualified Health Center

Organization:
The Achievable Foundation

Primary Contact: Ida Diab

Grant Amount: $25,000 for 12 months

Awarded: June 2019
Related Publications:
- The Achievable Foundation: A Case Study
Family Engagement

Family Engagement in Medicaid: A 50-state Scan of Efforts to Meaningfully Engage CSHCN Families in Medical Policymaking

Organization:
Center for Health Care Strategies

Primary Contact: Courtney Roman

Grant Amount: $127,135 for 18 months

Awarded: June 2019
Related Publications:
- Engaging Youth with Special Health Care Needs and Families of Children with Special Health Care Needs: Recommendations for Medicaid Agencies
Systems and Standards

Evaluation of the Use and Impact of National Standards for Systems of Care for Children and Youth with Special Health Care Needs

Organization:
Issues Research

Primary Contact: Douglas McCarthy

Grant Amount: $50,000 for 7 months

Awarded: June 2019
Related Publications:
- Assessing the Influence of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs
- The Influence of National Standards on Medicaid Managed Care Programs: Implications for Children and Youth with Special Health Care Needs
Systems and Standards

Equitable Funding for Children with Developmental Disabilities: Phase 3

Organization:
Public Counsel

Primary Contact: Brian Capra

Grant Amount: $135,000 for 18 months

Awarded: March 2019
Related Publications:
- Confronting Inequities in California’s Funding of Services for Children with Developmental Disabilities: A Sobering View of Our Current Standpoint
Care Coordination

Paying for the Transition from Pediatric to Adult Health Care

Organization:
National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $133,572 for 21 months

Awarded: March 2019
Related Publications:
- A Guide for Designing a Value-Based Payment Initiative for Pediatric-to-Adult Transitional Care
- Medicaid Managed Care Contract Language to Expand the Availability of Pediatric-to-Adult Transitional Care
Systems and Standards

Health Complexity Indicators to Guide and Inform Policy, System- and Practice-Level Efforts: Supporting and Learning from Efforts in Oregon

Organization:
Oregon Pediatric Improvement Partnership

Primary Contact: Colleen Reuland

Grant Amount: $166,608 for 24 months

Awarded: March 2019
Related Publications:
Systems and Standards

Whole Child Model Family Advisory Case Study

Organization:
Davis Health Strategies

Primary Contact: Caroline Davis

Awarded: December 2018
Related Publications:
- Family Engagement and California’s Whole Child Model: Lessons Learned from the Implementation of Family Advisory Committees
Care Coordination

National Care Coordination Standards for Children and Youth with Special Health Care Needs

Organization:
National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $286,759 for 18 months

Awarded: October 2018
Related Publications:
Family Engagement

Project Leadership Coordination and Expansion: Phase V

Organization:
Family Voices of California

Primary Contact: Elaine Linn

Grant Amount: $455,174 for 24 months

Awarded: October 2018

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