• Systems and Standards

    Pediatric Complex Care Seminar Session 6: Disorders of Tone

    Thursday, February 10, 2022 10:00 am to 11:00 am PT

    Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity.

  • Systems and Standards

    A Family-Centered Research Agenda for Supporting Caregivers of Children with Special Health Care Needs

    Tuesday, February 15, 2022 10:00 am to 11:00 am PT

    Family caregivers are the foundation of the pediatric health care system. However, many gaps exist in the support that is available to caregivers, due to low visibility of their work and impact within the healthcare system. Family leaders and researchers from across the country have partnered to develop a national research agenda focused on improving the health care system for children and youth with special health care needs (CYSHCN). Their newly published article titled Understanding Caregiving and Caregivers: Supporting CYSHCN at Home, is one in an eight-part series to be published as a supplement to Academic Pediatrics.

    In this webinar, the article’s authors will discuss the necessary and integral role of family caregiving, describe their study's findings, and reflect on the implications of their recommendations. We suggest that attendees read the article prior to the webinar.

    This work is led by the Children and Youth with Special Health Care Needs Research Network (CYSHCNet). CYSHCNet was founded in 2017 through a cooperative agreement with the Health Resources and Services Administration’s Maternal and Child Health Bureau.

     

  • Systems and Standards

    Pediatric Complex Care Seminar Session 7: Poly-pharmacy

    Thursday, March 10, 2022 10:00 am to 11:00 am PT

    Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity.

  • Care Coordination

    West Coast Summit Pediatric Palliative Care - Part 2

    Monday, March 28 to Tuesday, March 29, 2022

    The Summit is targeted for a multidisciplinary audience to highlight skills specific for providers who are interested in learning more about pediatric palliative care practice, techniques and teamwork. Hosted by George Mark Children’s House, the Summit will be in-person with session recordings available on November 10, 2021.

  • Systems and Standards

    Pediatric Complex Care Seminar Session 8: Sleep

    Thursday, April 14, 2022 10:00 am to 11:00 am PT

    Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity.

  • Systems and Standards

    Pediatric Complex Care Seminar Session 9: Aspiration

    Thursday, May 12, 2022 10:00 am to 11:00 am PT

    Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity.

  • Systems and Standards

    Pediatric Complex Care Seminar Session 10: Dysautonomia

    Thursday, June 9, 2022 10:00 am to 11:00 am PT

    Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity.