Building Systems that Work for Children with Complex Health Care Needs

The Lucile Packard Foundation for Children’s Health works to ensure that children and youth with special needs will be served by a family-centered system that provides ready access to a comprehensive array of high-quality, coordinated services designed and delivered to efficiently and effectively meet their unique physical, emotional, social and developmental needs. We are pleased to sponsor the March 2018 issue of the PEDIATRICS Supplement: Building Systems that Work for Children with Complex Health Care Needs. These articles help to clarify some of the difficult, systemic issues and challenges affecting health care for these children, and point the way toward their resolution.

Throughout 2018 we will engage in discussions with authors and experts in the field to explore ways we can improve the system of care for children with chronic and complex health care needs. Check back often for updates!

Also See: A recent report from Delaware Health and Social Services on Managing the Health Care Needs of Children with Medical Complexity (PDF).


A Conversation on Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction
Date and Time: September 20, 2018 11am-12pm PST

Sufficient access to services for children with medical complexity varies considerably by state, geographic region, and payer. Families, advocates, and health care professionals need to understand children’s rights. Policymakers and payers must help support reliable and appropriate coverage and benefits. Learn how medical-legal partnerships and other forms of advocacy can protect the rights of children and support families in an era of cost containment. 

Join us for a lively discussion on the article, Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction. The lead author and experts in the field will review what government and private health plans are doing and could do to promote optimal health, development, and family functioning for children with medical complexity. We suggest attendees read the article prior to the event. Audience Q&A is highly encouraged. Attendees can listen via web or phone. Read more.




Ethical Framework for Risk Stratification and Mitigation Programs for Children with Medical Complexity
Date: October 2018

Evolving Federal and State Health Care Policy: Toward a More Integrated and Comprehensive Care-Delivery System for Children with Medical Complexity
Date: November 2018


A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions
Date: August 22, 2018

A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?
Date: July 26, 2018

A Conversation on Models of Care Delivery for Children with Medical Complexity
Date: June 28, 2018

A Conversation on Meaningful Family Engagement, from Clinical Care to Health Policy
Date: June 6, 2018

A Conversation on the Emergence of Pediatric Complex Care
Date: April 10, 2018



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