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Guest Blog: New Tool Identifies Key Quality Measures for Children with Special Health Care Needs

Quality measurement is a critical component of state health programs, including Medicaid and State Title V CYSHCN programs that serve children and youth with special health care needs, A new National Academy for State Health Policy compendium of data and quality measures provides a robust reference tool for states working to measure and improve their systems of care for these children.

Building Systems that Work for Children with Complex Health Care Needs

The Lucile Packard Foundation for Children’s Health works to ensure that children and youth with special needs will be served by a family-centered system that provides ready access to a comprehensive array of high-quality, coordinated services designed and delivered to efficiently and effectively meet their unique physical, emotional, social and developmental needs. We are pleased to sponsor the March 2018 issue of the PEDIATRICS Supplement: Building Systems that Work for Children with Complex Health Care Needs. These articles help to clarify some of the difficult, systemic issues and challenges affecting health care for these children, and point the way toward their resolution.

Throughout 2018 we hosted discussions with authors and experts in the field to explore ways we can improve the system of care for children with chronic and complex health care needs. Access recordings of the conversations, slides and responses to audience questions below.

 

ARCHIVED CONVERSATIONS

A Conversation on the Effect of Payment Models in Children’s Health Care
Date: November 7, 2018

A Conversation on Ethical Considerations for a Fair and Effective Health Care System
Date: October 24, 2018

A Conversation on Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction
Date: September 20, 2018

A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions
Date: August 22, 2018

A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?
Date: July 26, 2018

A Conversation on Models of Care Delivery for Children with Medical Complexity
Date: June 28, 2018

A Conversation on Meaningful Family Engagement, from Clinical Care to Health Policy
Date: June 6, 2018

A Conversation on the Emergence of Pediatric Complex Care
Date: April 10, 2018

 

 

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Achieving Care Integration for Children with Medical Complexity: The Human-Centered Design Approach to Care Coordination

Taking a fresh look at the perennial issue of how to provide effective care coordination, a team of researchers has reimagined the process using human-centered design, an approach that focuses on the users’ needs. The goal is to integrate all sectors of care and support – medical, educational, financial and other services – so that care can be delivered effectively and better meet the needs of children, families, providers, and payers.

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A Conversation on the Effect of Payment Models in Children’s Health Care

Proposed changes in health care payment, from fee-for-service to alternative, risk-sharing payment models, can have a substantial impact on health services for children, especially those with complex care needs. In addition, tying payment to value can increase use of ambulatory and preventive services and encourage creative outreach. However, abrupt changes can interrupt continuity and reduce access to care. 

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The National Standards for CYSHCN: A Compendium of National Data and Quality Measure Sets

Quality measurement is a critical component of state health programs, including Medicaid and State Title V CYSHCN programs. This new compendium highlights quality measures aligned with key elements for a system of care for children and youth with special health care needs, as outlined in the National Standards of Care for Children and Youth with Special Health Care Needs. This tool compiles data and quality measures from applicable and widely used measure sets. Identification of data and quality measures can help states evaluate how well their system of care is serving CYSHCN.

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