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NETWORK NEWS

Q&A with Anand Chabra, MD, San Mateo County
Trained as both a pediatrician and epidemiologist, Dr. Anand Chabra has overseen maternal, child and adolescent health services for the San Mateo County Health System since 1999. He also is medical director for the county’s California Children’s Services (CCS) program, which serves children with special health care needs. We spoke with Dr. Chabra recently about his work.

Keep Up To Date with the New CSHCN Blog
Want to read the latest blog posts from the Program for Children with Special Health Care Needs at the Lucile Packard Foundation for Children's Health? Just enter your email at the bottom of the right-hand column to be notified whenever an article is posted on the blog. The Foundation, which sponsors the Network, also has launched a CSHCN program website.

CALIFORNIA POLICY

Update on Legislation to Fund Health Homes Program
The California Legislature has approved a bill authorizing the state to create a health homes program in Medi-Cal, an option available through the Affordable Care Act. The bill, (AB 361-Mitchell, D-Los Angeles) would allow the California Department of Health Care Services to offer additional services, including care coordination, for people in Medi-Cal with chronic conditions. The bill now is before Governor Brown. If this legislation is of interest to you, consider contacting the Governor’s office.

NATIONAL POLICY

Your Chance to Comment on the Health and Human Services Strategic Plan
The Department of Health and Human Services is seeking public comment on its draft strategic plan, which is updated every four years. Health care and vulnerable populations both are addressed in the proposed plan, which will cover 2014-2018. The deadline for comment is October 15. This is an opportunity to make your voice heard. Read the plan and send comments to strategicplanning@hhs.gov.

RESOURCES

Undocumented Parents, Citizen Kids and the Affordable Care Act
This Second Opinion column from the San Diego Voice features a Q&A and video on how to enroll in insurance when children are citizens but their parents are not. Read more.

Best Kept Secret: Documentary Highlights Transition to Adult Care
Public Broadcasting’s POV series will feature a documentary on a teacher in a Newark, NJ, high school who races to find independent living options for her students with special needs as they prepare to graduate and leave the safety of the school environment. The program, “Best Kept Secret,” airs at 7 p.m. on Sept. 23 and at other times. Check local listings and read more.  

Complex Child: E-Newsletter for Parents
Complex Child is a monthly online magazine written by parents of children with special health care needs. It offers medical information and personal experiences, and covers a range of topics. The September issue is devoted to advocacy. Learn more.

RESEARCH

Kids Not Adhering to Prescriptions? Medical and Economic Costs Are High
Children and adolescents with chronic conditions who fail to take their medications as prescribed run a higher risk of emergency room visits and also contribute to increased health care costs, according to an analysis of 10 studies, published in the journal Pediatrics. The authors suggest that a multidisciplinary approach to targeting non-adherence in children and youth might provide an opportunity to improve health outcomes and reduce health care use. Read more.

Chronic Conditions Raise Trauma Risk
A study published in the Journal of Trauma and Acute Care Surgery finds that a pre-existing chronic condition significantly raises the mortality risk for pediatric trauma patients. The authors suggest that additional research should be conducted and treatment guidelines developed. Read the abstract.

IN THE NEWS


EVENTS

Meeting: Northern California Collaborative for Pediatric Palliative Care
September 16, 2013
1 – 3:30 p.m. PDT
Oakland Children’s Hospital

The collaborative is a group of health care professionals, community members and families committed to continuity, standards and excellence of care across settings for children with life-threatening conditions. Learn more and RSVP to join.

International Conference on Young Children with Special Needs and Their Families
October 16-18, 2013
San Francisco, Calif.

Sponsored by the Division for Early Childhood of the Council for Exceptional Children, this conference will feature hundreds of educational sessions and a variety of networking opportunities. The theme is Bridging Research, Policy and Practice…Every Day, Every Chance, Every Child. Register.

WEBINARS

Empowering Individuals and Families as Advocates (Advocacy ATLAS)
Septmber 23, 2013
11 a.m. – noon  PDT

The Advocacy ATLAS (Accessible Tools for Leadership and Advocacy Success) provides resources on leadership, communication, outreach, and advocacy skills. Participants will learn how to navigate the ATLAS and use the broad range of tools provided. Learn more and register.

Customized Employment: The Role of the Discovery Process in Transition Planning for Young Adults with Disabilities
September 25, 2013
Noon, PDT

This webinar will highlight strategies to improve post-school outcomes for young adults with disabilities. It will provide an overview of Customized Employment, a planning approach that emphasizes the student’s personal interests, strengths and complexities for decision making that will guide the transition process. No registration is required. See the details.

KEEP IN TOUCH
Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at Janis.Connallon@lpfch.org with your news or updates. Newsletter Editor: Eileen Walsh