NETWORK NEWS
 
System Thinking: Kern County’s Arthur Manalac, RN
Public Health Nurse Arthur Manalac is learning how to be a big-picture guy as he uses data to improve care coordination for young children in California’s rural Kern County. Moving from working directly with families to streamlining systems of care, he says, “takes a different kind of thinking.” Read more.
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– Janis Connallon, Network Manager & Eileen Walsh, Newsletter Editor
 
 

CALIFORNIA POLICY

Less than Ideal: How the 'Hidden Health Care System' in
California Schools Serves Children with Special Needs

California has the largest population of children with special health care needs of any state, yet 57 percent of school districts report having no school nurse personnel. A new study from the California State University-Sacramento School of Nursing finds that CSHCN are potentially at risk because health school services are provided by a variety of school staff, vary greatly by school district, operate under a confusing patchwork of regulations, and are often underfunded. The research was funded by the Lucile Packard Foundation for Children’s Health. See the report and policy recommendations and a related blog post.

Also see:
Report Finds More Students with Serious Medical Needs, But Few School Nurses, EdSource, 3/28/14
 
NATIONAL POLICY

Obama Signs 'Doc Fix" to Maintain Medicare Rates, Other Payments
Scheduled cuts in Medicare payments to physicians will be delayed for another year under legislation signed April 1 by President Obama. The bill also includes other provisions to extend various health care payments, including another delay in annual Medicaid reductions to hospitals that treat a “disproportionate share” of low-income patients.


DID YOU KNOW?

Children of color comprise 67% of California’s children with special health care needs, compared to 41% in all other states. See the data on kidsdata.org.


UPCOMING EVENTS

California Children’s Services Officials to Speak: Annual Public Policy and Education Day – Children's Hospice and Palliative Care Coalition
April 7, 8:30 a.m. to 3:30 p.m.
California State Capitol
Dr. Robert Dimand, CCS Chief Medical Officer, and Dr. Jill Abramson of CCS will be lunchtime speakers. The day will focus on the scheduled "sunset" of California Children’s Services, and the potential impact on programs that have extended children's access to in-home palliative and hospice care. Learn more and register.


RESEARCH

CDC Estimates 1 in 68 Children Has Autism Spectrum Disorder
The Centers for Disease Control and Prevention on March 28 released a report estimating that 1 in 68 US children has autism spectrum disorder. The population-based research was conducted at 11 sites, and prevalence varied widely by site, gender and racial/ethnic background.

Study: Behavior Problem May Be Best Addressed at Pediatrician’s Office
Children with behavioral and mental health problems are more likely to participate in treatment when it is provided at their pediatrician’s office, according to a new study published in the April edition of Pediatrics. Read more and see the abstract.


CSHCN IN THE NEWS AFFORDABLE CARE ACT
 
Conference to Focus on Care Coordination under ACA
The Devil Is in the Details: Coordinated Care under Covered California is the topic for the Children's Regional Integrated Service System (CRISS) annual conference.
May 9, 9 a.m. to 3 p.m.
State Building, 1515 Clay Street, Oakland, CA
Free nursing CEUs available.
For a flier and registration form, call 510-540-8293 or email LSoman6708@aol.com.


WEBINARS

Disaster Preparedness Planning for Family Caregivers
Wednesday, April 16, 2014
11 a.m. to 1:30 p.m.
US Department of Health and Human Services
Register here.

Starting and Supporting Family Advisory Groups
Thursday, April 24, 2014
9 a.m. to 10 a.m.
National Center for Medical Home Implementation and American Academy of Pediatrics
Last of a three-part webinar series focusing on promoting teamwork and partnership in pediatric medical homes. Learn more about the series and register.


WE'D LIKE TO HEAR FROM YOU
Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at Janis.Connallon@lpfch.org with your news or updates. Newsletter Editor: Eileen Walsh