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A National Study of Patient and Family Advisory Councils in U.S. Children’s Hospitals

Organization: Institute for Patient- and Family-Centered Care

Primary Contact: Pam Dardess

Grant Amount: $249,848 for 18 months

Date Awarded:

Purpose

Patient- and Family-Centered Care is an accepted quality standard for adult and pediatric care, but its principles have not been widely adopted as drivers of health care systems improvement. To address this, some hospitals and health plans have developed Patient and Family Advisory Councils (PFAC). This grant will support work to understand current PFAC practices in U.S. children’s hospitals, define the characteristics of high-performing councils, and develop and distribute policy and practice recommendations nationwide.

Related Resources

Key Learnings for Strengthening Partnerships: Recommendations from a National Study of Patient and Family Advisory Councils in U.S. Children’s Hospitals

A national study explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs) in children’s hospitals. This report highlights ten key learnings from the study, and provides practical guidance about strengthening partnerships with families and patients.

Adapting and Responding to a Pandemic: Patient and Family Advisory Councils in Children's Hospitals during COVID-19

A team of researchers led by the Institute for Patient- and Family-Centered Care investigated the effects of the COVID-19 pandemic on Patient and Family Advisory Councils (PFACs) including how PFACS adapted operations and the intersection with issues related to PFAC diversity, equity, and inclusion.

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Advancing DEI in Children’s Hospital Patient and Family Advisory Councils (PFACs): Resources and Learning Community

Patient and Family Advisory Councils (PFACs) are an invaluable way for hospitals and clinics to partner with their communities in developing, implementing, and evaluating policies...

Building Capacity for Diversity, Equity, and Inclusion in Children’s Hospital Patient Family Advisory Councils

Patient Family Advisory Councils (PFACs) play an important role in children’s hospitals. These grant funds will be used to identify promising practices that can be...

A National Study of Patient and Family Advisory Councils in U.S. Children's Hospitals – Supplement