New Tool Helps Measure How Families Experience Integration of Care

Grantee:

Richard Antonelli, MD, MS, Boston Children’s Hospital

Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.

Q&A: Care Planning for Children with Special Needs

Panelists answer questions from a November 9 webinar that discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.

First Person: The Making of the "Super Parents" Series

Thousands of people have visited our "Super Parents" photography project since its launch last month. Here we share some behind-the-scenes moments to explain how and why we produced this project, which was shot by Pulitzer Prize-winning photographer, Deanne Fitzmaurice.

Super Parents on CNN

This morning, CNN published "An Intimate View of the 'Super Parents' of Chronically Ill Children," a story about our Foundation's photography project that documents the lives of families who have children with disabilities or chronic medical conditions.

Webinar Describes Care Planning Process for Children with Special Health Care Needs

What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? In this November 9 webinar, two expert speakers discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.

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