Families and health care providers frequently report long delays in obtaining essential supplies and equipment such as wheelchairs, walkers, ventilators, and hospital beds for children with complex conditions. Based on dozens of interviews, analysis of family surveys, and examination of state and county policies, this report outlines the multiple obstacles that contribute to these sometimes devastating delays, and makes recommendations for change.
New research from Mathematica Policy Research weighs the question: “Can we draw lessons from Medicare to improve care coordination for children with special health care needs - especially those covered by Medicaid?” The answer is yes.
How is it possible to assess whether an organization or government agency truly embraces family engagement in its work? This new issue brief from Family Voices provides a framework for asking the key questions.
When families are engaged in their children’s care – including being provided with the support necessary to allow meaningful participation – health care systems improve, the quality of care improves, and children and families are better served. This brief analyzes results from a survey of county CCS administrators on how families are currently engaged in their programs, and provides suggestions for how family roles could be enhanced.
As health care and financing systems become more sophisticated, health care systems are increasingly using a process known as "risk tiering" to group patients with similar degrees of need for health care and care coordination services. Payers are becoming part of this conversation, which for children is in its very early stages. Families and care providers of children with chronic and complex conditions should understand the risk tiering process, as it may affect access to services these children need. This February 28 conversation describes current tiering practices and uses, and makes recommendations for policy and research, particularly as the process relates to children with special health care needs.
The health and well-being of our most vulnerable of children, especially developing children and children with complex health care needs, are sentinel indicators of the effectiveness of the systems on which they depend. The latest issue of the Pediatrics supplement: “Building Systems that Work for Children with Complex Health Care Needs,” sponsored by the Lucile Packard Foundation for Children’s Health, helps to clarify some of the difficult, systemic issues and challenges affecting health care for these children, and point the way toward their resolution.