June 15 Webinar: Measuring Family Experience of Care Integration to Improve Care Delivery

This June 15 webinar will introduce the Pediatric Integrated Care Survey, a validated instrument from Boston Children’s Hospital that assesses family experience of care integration. The survey asks family respondents to identify the members of their child's/youth's care team and report on their experiences with integration across disciplines, institutions, and communities. The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. Join us!

Supply and Demand for Child and Adolescent Mental Health Services

Limited access to mental health services for children is a well-recognized national problem. The authors suggest that while increasing the supply of providers is a challenge, a demand side approach offers a promising strategy to addressing access issues. Preventing the development or reducing the severity of child and adolescent emotional disorders hold great promise as cost-effective ways to reduce the demand for scarce services, they write.

Challenges and Joys: Pediatricians Reflect on Caring for Children with Special Health Care Needs

Children with special health care needs (CSHCN) fare better when they are cared for in a "medical home," yet only a small percentage receive such care. In a series of focus groups and interviews, California pediatricians and other key informants discuss their views on caring for CSHCN, and their ideas about how system changes could enhance their willingness to provide a medical home.

New Grants Target Care Coordination for Children with Special Health Care Needs

Improving care coordination for children with special health care needs and their families is the goal of two grants awarded March 1 by the Lucile Packard Foundation for Children's Health. Researchers from Children's Hospital Buffalo will design a family-centered system of care coordination for children with medical complexity, and Health Management Associates will examine states that have made progress toward inter-agency collaboration.

Medicaid: A Lifeline for Families of Children with Special Health Care Needs

Public health insurance programs like Medicaid cover nearly half of children with special health care needs (CSHCN) nationally. The Kaiser Family Foundation recently released an article outlining the important role Medicaid plays in the lives of these children and their families. Learn more and see specific data on California’s one million CSHCN, along with national comparisons.

American Heart Month: Meet Isabella

February is American Heart Month. Isabella, a 4-year-old with Down syndrome and developmental delays, had open-heart surgery to correct a heart defect when she was 6 months old.

New Tool Helps Measure How Families Experience Integration of Care


Richard Antonelli, MD, MS, Boston Children’s Hospital

Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.