In 2014, a national group of experts released a core set of standards for improving systems of care for children and youth with special health care needs. A newly updated version streamlines, simplifies, and updates those standards to encourage readability and ease of use.
This June 15 webinar will introduce the Pediatric Integrated Care Survey, a validated instrument from Boston Children’s Hospital that assesses family experience of care integration. The survey asks family respondents to identify the members of their child's/youth's care team and report on their experiences with integration across disciplines, institutions, and communities. The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. Join us!
A new report from Public Counsel documents the persistence of a longstanding issue in California—disparities in purchase of services for ethnic and racial groups served by the state's 21 Regional Centers.
Pediatric patients and their families rountinely should have the opportunity to give feedback on the health services they receive, and should have their feedback thoughtfully considered by providers, says Edward L. Schor, MD.
Limited access to mental health services for children is a well-recognized national problem. The authors suggest that while increasing the supply of providers is a challenge, a demand side approach offers a promising strategy to addressing access issues. Preventing the development or reducing the severity of child and adolescent emotional disorders hold great promise as cost-effective ways to reduce the demand for scarce services, they write.
Children with special health care needs (CSHCN) fare better when they are cared for in a "medical home," yet only a small percentage receive such care. In a series of focus groups and interviews, California pediatricians and other key informants discuss their views on caring for CSHCN, and their ideas about how system changes could enhance their willingness to provide a medical home.
Improving care coordination for children with special health care needs and their families is the goal of two grants awarded March 1 by the Lucile Packard Foundation for Children's Health. Researchers from Children's Hospital Buffalo will design a family-centered system of care coordination for children with medical complexity, and Health Management Associates will examine states that have made progress toward inter-agency collaboration.
Public health insurance programs like Medicaid cover nearly half of children with special health care needs (CSHCN) nationally. The Kaiser Family Foundation recently released an article outlining the important role Medicaid plays in the lives of these children and their families. Learn more and see specific data on California’s one million CSHCN, along with national comparisons.
Richard Antonelli, MD, MS, Boston Children’s Hospital
Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.