Public health insurance programs like Medicaid cover nearly half of children with special health care needs (CSHCN) nationally. The Kaiser Family Foundation recently released an article outlining the important role Medicaid plays in the lives of these children and their families. Learn more and see specific data on California’s one million CSHCN, along with national comparisons.
Richard Antonelli, MD, MS, Boston Children’s Hospital
Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.
Panelists answer questions from a November 9 webinar that discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.
Thousands of people have visited our "Super Parents" photography project since its launch last month. Here we share some behind-the-scenes moments to explain how and why we produced this project, which was shot by Pulitzer Prize-winning photographer, Deanne Fitzmaurice.
This morning, CNN published "An Intimate View of the 'Super Parents' of Chronically Ill Children," a story about our Foundation's photography project that documents the lives of families who have children with disabilities or chronic medical conditions.
The mother of an adult son with autism reflects on the North Miami police shooting of a therapist who was trying to help a young man with autism. Law enforcement officers must be trained to protect the entire population, she says.
What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? In this November 9 webinar, two expert speakers discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.