Systems and Standards Fact Sheets
April 3, 2019

An Almost Complete List of Services Used by Families and Children with Special Health Care Needs

By: Edward L. Schor, MD

Children with chronic and complex health conditions and their families require access to a wide array of health care and other services to function optimally. These needs can be identified by patients and families in the creation of shared care plans, or consequent to screenings and assessments. Various referral policies and practices have been developed to facilitate access to these services. The following lists are intended to provide a classified enumeration of services that may be used and of value to children with special health care needs and their families. It can be used for care mapping, care planning, resource database creation and referral system development.