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Children with chronic and complex health conditions and their families require access to a wide array of health care and other services to function optimally. These needs can be identified by patients and families in the creation of shared care plans, or consequent to screenings and assessments. Various referral policies and practices have been developed to facilitate access to these services. The following lists are intended to provide a classified enumeration of services that may be used and of value to children with special health care needs and their families. It can be used for care mapping, care planning, resource database creation and referral system development.

Related Grants

Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.

The Children's Specialty Care Coalition hosted a virtual legislative briefing on the recently released commissioned report by the National Academies of Sciences, Engineering, and Medicine titled, "The Future Pediatric Subspecialty Physician Workforce: Meeting the Needs of Infants, Children, and Adolescents."