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Care coordination is an important approach to addressing the fragmented care that children with medical complexity often encounter. What are optimal care coordination services? How does care coordination intersect with care integration and case management? Learn best practices and how to implement a process that will achieve improved outcomes and value for children with special health care needs and their families.

Discussing the article, Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?, the lead author and experts in the field reviewed the article’s key content and discussed why care coordination is vital to improving the system of care.

This article is part of a supplement to Pediatrics entitled, “Building Systems that Work for Children with Complex Health Care Needs.” 

Webinar Recording

Speakers

Dennis Z. Kuo, MD, MHS

Associate Professor, University at Buffalo and Chief, Division of General Pediatrics, UBMD

Dr. Dennis Kuo is a primary care pediatrician with a special interest in children with disabilities and medical complexity. He is Associate Professor of Pediatrics at the University at Buffalo, Division Chief of General Pediatrics at UBMD Pediatrics, and an attending physician at Oishei Children’s Hospital in Buffalo, NY. He is the current Chair of the American Academy of Pediatrics Council on Children with Disabilities (COCWD), following six years of serving on the Executive Committee of the COCWD, and he is a member of the Board of Directors of Family Voices.

Ann S. O’Malley, MD, MPH

Senior Fellow, Mathematica Policy Research

Dr. Ann O'Malley is a Senior Fellow at Mathematica Policy Research. She is a Co-Principal Investigator on the Comprehensive Primary Care Plus Evaluation. She does qualitative and quantitative primary care health services research with a focus on improving support for primary care practices to provide more coordinated and comprehensive care.

Michele Juda

Executive Director, Parent to Parent of New York State

Michele Juda is Executive Director of Parent to Parent of New York State. Employed by the organization since 2008, she was initially responsible for directing the Family to Family Health Information Center. Michele and her husband are the parents of two sons, both of whom were born prematurely, the youngest son adopted from foster care. She navigated the NICU of a hospital more than 125 miles from home when her oldest son was born over twenty years ago. More recently she has been a support to her youngest son in planning for his transition to adult services.

Christopher Stille, MD, MPH

Professor of Pediatrics and Section Head, General Academic Pediatrics, University of Colorado School of Medicine, Children's Hospital Colorado

Dr. Christopher Stille is professor of pediatrics and section head of General Academic Pediatrics at the University of Colorado School of Medicine and Children's Hospital Colorado. The primary focus of his research has been improving communication and coordinated care for CYSHCN between primary care clinicians, subspecialists, and family members. He has led projects funded by the U.S. Maternal and Child Health Bureau, the Robert Wood Johnson Foundation, and local and regional funders to pursue this investigation. 

Related Grants

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.

The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.