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The term “chronic care” typically is applied to health care services provided to patients with chronic medical conditions. However, if chronic care is used to describe “a planned, longitudinal, continuous and coordinated, forward-looking approach to providing health care and promoting health and well-being” it can equally well be applied to preventive care, for at its best, preventive care addresses health beliefs and behaviors with lifelong consequences. Edward Schor, MD, suggests that pediatric practices may need to rethink how they are organized in order to provide this new kind of chronic care.

 

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The Children's Specialty Care Coalition hosted a virtual legislative briefing on the recently released commissioned report by the National Academies of Sciences, Engineering, and Medicine titled, "The Future Pediatric Subspecialty Physician Workforce: Meeting the Needs of Infants, Children, and Adolescents."

This fact sheet summarizes the results of a survey of nearly 650 caregivers of CYSHCN about their experiences trying to access pediatric specialty care in California.