Family Engagement Journal Articles
November 1, 2022

The Intersection of Diversity, Equity, and Inclusion with Pediatric Patient and Family Advisory Councils

By: Ndidi I. Unaka, Mindy Hoang, Jesse Hsu, Pam Dardess, Carlos T. Casillas, Meghan Fanta, Deborah L. Dokken, Andrew F. Beck

Researchers explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs), investigated the effects of the COVID-19 pandemic on PFACs, and the intersection with issues related to PFAC diversity, equity, and inclusion. This article focuses on recruitment, retention, and engagement of patient family advisors with diverse perspectives and backgrounds. Through a questionnaire and interviews, several themes emerged including the importance of diversity in PFACs membership, the effectiveness of personalized approaches to recruitment, and the challenges of meaningful engagement with historically marginalized patients and families. Findings from this study help inform strategies to promote diversity, equity, and inclusion within PFACs across hospital systems.