The Intersection of Diversity, Equity, and Inclusion with Pediatric Patient and Family Advisory Councils
Researchers explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs), investigated the effects of the COVID-19 pandemic on PFACs, and the intersection with issues related to PFAC diversity, equity, and inclusion. This article focuses on recruitment, retention, and engagement of patient family advisors with diverse perspectives and backgrounds. Through a questionnaire and interviews, several themes emerged including the importance of diversity in PFACs membership, the effectiveness of personalized approaches to recruitment, and the challenges of meaningful engagement with historically marginalized patients and families. Findings from this study help inform strategies to promote diversity, equity, and inclusion within PFACs across hospital systems.
Key Learnings for Strengthening Partnerships: Recommendations from a National Study of Patient and Family Advisory Councils in U.S. Children’s Hospitals
Family Engagement and California’s Whole Child Model: Lessons Learned from the Implementation of Family Advisory Committees
Adapting and Responding to a Pandemic: Patient and Family Advisory Councils in Children's Hospitals during COVID-19