Legislative Briefing: Children with Special Health Care Needs in California

On April 18, 2013, the Lucile Packard Foundation for Children's Health co-sponsored a briefing for California lawmakers regarding how the state health care system functions for children with special health care needs (CSHCN) and their families.

The briefing was sponsored by Assemblymember Richard Pan, MD, chair of the Assembly Health Committee.

Materials from the Briefing:

 

Speaker Videos:

 

Here are the speakers' slides from the briefing.

An estimated one million California children and teens have a special health care need, and many of these children require multiple services from the state’s health care system. But compared to children in other states, California’s children with special health care needs receive care that is less coordinated, less family-centered, and fails to meet many of the key quality indicators prescribed by the Federal Maternal and Child Health Bureau.

A recent in-depth study commissioned by the foundation, Children with Special Health Care Needs in California: A Profile of Key Issues, provides important background information. Another Foundation report, Strengthening the System, highlights gaps in the current health care system for chronically ill children and suggests enhancements to improve and coordinate care.

pan briefing photo

Back row, left to right: Margaret McManus, Paul Wise, MD, Assemblymember Richard Pan, MD, David Alexander, MD, Bernardette Arellano

Front row, left to right: Juno Duenas, Christina Bethell, PhD, Margaret Comeau, MHA

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