A National Health Systems Research Agenda for Children and Youth With Special Health Care Needs: Supplement to Academic Pediatrics
A national group of researchers and family leaders aim to improve the system of care for children and youth with special health care needs (CYSHCN) through the establishment of a family-centered national research agenda. This supplement to Academic Pediatrics provides a blueprint of research priorities that address health outcomes and the well-being of CYSHCN. The research topics were identified through feedback from a diverse group of stakeholders, including youth and family caregivers. In addition to implications for researchers, the agenda and research gaps reported in the supplement are intended to inform policy and funding priorities. Click the links below to read the articles:
Authors from select articles describe their findings and reflect on the implications of their recommendations. View the webinars to learn more:
This work was led by the Children and Youth with Special Health Care Needs Research Network (CYSHCNet). CYSHCNet was founded in 2017 through a cooperative agreement with the Health Resources and Services Administration’s Maternal and Child Health Bureau.