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More children are living with serious chronic conditions than ever before. Many of these children require home health care. A shortage of adequately trained pediatric home health care providers means that this care may fall on families. Addressing home health care workforce issues, from competitive wages to better training, can help alleviate undue family hardship.

Guided by Home Health Care for Children with Medical Complexity:  Workforce Gaps, Policy, and Future Directions, this engaging discussion on family needs for home health care and potential workforce and policy solutions featured the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.

Webinar Recording

Speakers

Cara Coleman, JD, MPH

Consultant, Family Voices and Instructor of Pediatrics, Virginia Commonwealth University Medical School

Cara is the author of “I Am Justice, Hear Me Roar” about her daughter. She is the Family Voices liaison to the AAP Council on Children with Disabilities Executive Committee. In the past, Cara has worked as an adult health specialist, a case manager for homeless pregnant women, in a shelter for battered women, a law clerk for a Judge, immigration subject matter consultant, and an attorney serving low-income immigrants. Cara received her bachelor’s from the University of Notre Dame, her MPH from Tulane University and her law degree from Temple University.  

Molly Hofmann, MSN, PCNS-BC, AFN-BC

Associate Director of Care Coordination, University of Illinois at Chicago-Specialized Care for Children

Molly Hofmann is a pediatric advanced practice nurse at the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC). DSCC is Illinois’ Title V agency serving children and youth with special health care needs. Prior to DSCC, Molly worked at the OSF Children’s Hospital of Illinois practicing in a child abuse clinic and in the pediatric home ventilation program. Her nursing background includes pediatrics, emergency department, and performance improvement. Molly is currently working on her Doctorate of Nursing Practice through the University of Illinois at Chicago. 

Roy Maynard, MD

Medical Director, Pediatric Home Service

Dr. Maynard completed his undergraduate degree at Penn State University and attended medical school at Sidney Kimmel Medical College. He completed a residency in pediatrics and fellowships in neonatology and pediatric pulmonology at the University of Minnesota. Dr. Maynard also completed three years of service at Pine Ridge Indian Hospital in South Dakota as a general pediatrician. Dr. Maynard retired from Children’s Minnesota three years ago and is currently the medical director at Pediatric Home Service in Roseville, MN. His current interest is researching pediatric home care for children with medical complexity. His most recent publication “Home health care availability and discharge delays in children with medical complexity” was published in Pediatrics in January 2019.

Carolyn C. Foster, MD, MSHS

Assistant Professor, Division of Academic General Pediatrics and Primary Care, Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Attending Physician, Ann & Robert H. Lurie Children’s Hospital of Chicago

Dr. Carolyn Foster received her medical doctorate from Harvard University and her pediatric and health services research training from Seattle Children's Hospital. As a physician-investigator, she focuses on developing and evaluating health care delivery interventions for children with medical complexity that maximize their health outcomes and optimize their health care utilization within a family context. She is particularly interested in improving the access to and quality of home and community-based health care for children so that they can have safe, independent, and vibrant lives at home, school, and play.

Related Grants

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.

The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.