Family Engagement Research & Reports
September 25, 2023

Strengthening the Diversity and Role of Patient and Family Advisory Councils: Opportunities for Action

By: Pam Dardess, Deborah Dokken, Ushma Patel, LaToshia Rouse, Ndidi Unaka, Andrew Beck, Carlos Casillas

Strengthening diversity, equity, and inclusion and addressing health inequities requires that the voices of all patients and families are heard — particularly populations that have been historically marginalized. A national study identified best practices within children's hospitals for strengthening the representativeness of Patient and Family Advisory Councils (PFACs) and for partnering with patient and family advisors on Diversity Equity and Inclusion (DEI)  initiatives. This resource highlights six key areas and provides examples from the field to help hospitals improve DEI in PFACs.