Clear communication between families and health care providers is essential to the delivery of high-quality care for children with medical complexity. Marsha Perez, parent mentor for Spanish-speaking families at the Lucile Packard Children’s Hospital, shares tips for health care professionals on how best to communicate with Spanish-speaking families.
Public Counsel discusses the importance of California’s regional centers to families of children with disabilities and their advocacy efforts to address disparities in the regional center system.
In this webinar, authors discuss their article, titled Moving from Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs. Speakers describe their study's findings, and present potential research topics to address the gaps in investing in children’s health.
This brief describes key considerations and challenges in care coordination quality measurement and identifies sample metrics that could be leveraged to evaluate the quality of care coordination systems.
This guide is intended to support state health officials and stakeholders in using, adapting, and implementing the National Care Coordination Standards for CYSHCN to develop or improve care coordination systems.
There are a variety of approaches that states can use to finance care coordination services for CYSHCN through Medicaid. Financing of care coordination is critical to the quality and sustainability of these services. This brief highlights key components and themes across five states’ approaches to financing care coordination.
This is the final seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Cara Coleman, Dr. Peter Rosenbaum, and Treeby Brown discuss patient engagement in clinical research.
An updated report by Public Counsel outlines persistent service funding disparities between racial and ethnic groups of children in California’s regional center system. The report evaluates the outcomes of a disparity reduction program established by the state in 2016 and urges the state’s legislative and executive administration leadership to take action on the identified recommendations for addressing the system’s ongoing problems.
This is the ninth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kathy McClelland, Katy Peck, and Dr. Christpher Russell discuss aspiration in the care of children with medical complexity.
A team of researchers led by the Institute for Patient- and Family-Centered Care investigated the effects of the COVID-19 pandemic on Patient and Family Advisory Councils (PFACs) including how PFACS adapted operations and the intersection with issues related to PFAC diversity, equity, and inclusion.
