In this webinar, authors discuss their article, titled Moving from Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs. Speakers describe their study's findings, and present potential research topics to address the gaps in investing in children’s health.
This is the final seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Cara Coleman, Dr. Peter Rosenbaum, and Treeby Brown discuss patient engagement in clinical research.
An updated report by Public Counsel outlines persistent service funding disparities between racial and ethnic groups of children in California’s regional center system. The report evaluates the outcomes of a disparity reduction program established by the state in 2016 and urges the state’s legislative and executive administration leadership to take action on the identified recommendations for addressing the system’s ongoing problems.
This is the ninth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kathy McClelland, Katy Peck, and Dr. Christpher Russell discuss aspiration in the care of children with medical complexity.
A team of researchers led by the Institute for Patient- and Family-Centered Care investigated the effects of the COVID-19 pandemic on Patient and Family Advisory Councils (PFACs) including how PFACS adapted operations and the intersection with issues related to PFAC diversity, equity, and inclusion.
This fact sheet answers key questions about access to care through California Children’s Services during COVID-19. It also provides information on free legal assistance. The fact sheet is available in English, Chinese, and Spanish.
This is the eighth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kate Robinson of Family Voices will be joined by Kate Holler, Sarah Perkins, Dr. Caroline Okorie, and Dr. Shelly Weiss to discuss sleep.
This is the seventh seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Dr. Eyal Cohen will be joined by Sarah Carlson, Kasey Dudley, Dr. James Feinstein, and Luke Orth to discuss polypharmacy.
Children and youth with special health care needs (CYSHCN) have a range of medical, educational, and support service needs to achieve optimal health and wellness. Principles of care for CYSHCN have been well described, but the literature is lacking particularly on implementation and integration of care across different settings and systems. The authors identify four primary areas of investigation that could further understanding of how to adopt and spread principles of care for CYSHCN.
Health systems are designed to support children and youth with special health care needs (CYSHCN) but do not often consider the health and well-being of their family. Despite a growing body of literature, substantial gaps remain in understanding the impact of caregiving on family health and well-being and the provision of support for families. This article describes the current state of research on the health of families of CYSHCN and provides recommendations for future investigation.
