Publications

Mental illness is an increasingly common condition among California’s children, yet the state lacks a coherent system of care. In 2018, the California Children’s Hospital Association (CCHA) convened a workgroup to discuss this emerging crisis, and now has released a report offering recommendations for action. CCHA President & CEO Ann-Louise Kuhns, discusses the report and what needs to be done. 

Family Voices developed an assessment tool for measuring family engagement in health care systems and created supporting materials to assist in the recruitment of and meaningful engagement with families to improve systems of care, programs, and policies.

Hear from two statewide projects – a parent leadership training program and a hospital learning collaborative – that are integrating families as equal partners in addressing system issues. They discuss what it really takes to foster an effective and sustainable collaboration.

This webinar on family needs for home health care and potential workforce and policy solutions features the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.

Many children with medical complexity receive care in home and community-based settings. These services may be covered using Medicaid waivers. Authors of the article evaluated how states use these waivers to provide coverage to children with medical complexity and determine services offered. The findings indicate great variability in how states interpret scope of coverage and services and how this variability could impact child and family outcomes.

In many states, home and community-based services are covered for children with medical complexity through Medicaid waivers. Authors of the article developed a systematic and reproducible approach to evaluate the waivers for overall coverage of children with medical complexity in different states.

Edward Schor, MD, who for the past eight years has led the Foundation’s work to improve the system of care for children with special health care needs, will retire July 2. Here he reflects on the Foundation’s progress and how best to continue efforts to create a system that works for children and families.

An analysis of workforce gaps, payment models, and policy challenges unique to home health care for children and youth with medical complexity, including legal challenges brought by families because of home nursing shortages. The authors propose a portfolio of solutions to address the current failures.