• Research & Reports

    California Children’s Services Needs Assessment: Looking Back to Move Forward

    The Family Health Outcomes Project at the University of California San Francisco conducted a case study to examine what was and was not accomplished following previous needs assessments of California Children’s Services, one of the programs funded in part by Title V. The author offers strategies and recommendations to ensure that progress is made on the priorities raised by stakeholders who participate in future needs assessment cycles.

  • Insights

    Using the Family Engagement in Systems Assessment Tool: A Real World Example

    The Family Voices Family Engagement in Systems Assessment Tool (FESAT), available in English and Spanish, can be used for planning, assessing, and improving family engagement in systems-level initiatives. This interview describes the experience of implementing this approach in a statewide Title V program and offers recommendations for use.

  • Event and Webinar Recaps

    Health Systems Strategies that Prioritize Children with Health Complexity

    Health complexity is a concept that considers both a child’s medical and social complexity. For health systems, identifying and supporting children with health complexity directly aligns with efforts to eliminate health disparities. This webinar described how health systems can identify children with health complexity and provided actionable strategies and models to use this information to improve services and supports for families. Presenters shared real world examples and recommendations based on technical assistance provided to State Medicaid and Children’s Health Insurance Program (CHIP) agencies and health systems over the last five years. Additionally, a panel of health system leaders who have received technical assistance shared their reflections and learnings.

  • Research & Reports

    Health Systems Strategies to Ensure a Focus on Children with Health Complexity

    This brief applies health complexity, a concept that considers both a child’s medical and social complexity, to address health disparities. It includes recommendations on how state agencies and health systems can develop and use health complexity data to ensure the most vulnerable children are at the center of health system redesign.

  • Journal Articles

    The Intersection of Diversity, Equity, and Inclusion with Pediatric Patient and Family Advisory Councils

    Researchers explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs), investigated the effects of the COVID-19 pandemic on PFACs, and the intersection with issues related to PFAC diversity, equity, and inclusion. This article focuses on recruitment, retention, and engagement of patient family advisors with diverse perspectives and backgrounds. Findings from this study help inform strategies to promote diversity, equity, and inclusion within PFACs across hospital systems.

  • Event and Webinar Recaps

    Proceedings from the National Forum on Care Coordination for CYSHCN

    The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.

  • Issue Briefs

    Working With Community-Based Organizations and Individuals with Lived Experience to Support Continuity of Coverage at the End of the COVID-19 Public Health Emergency

    The unwinding of the COVID-19 public health emergency will require states to redetermine eligibility for millions of children and families. Partnering with community-based organizations, family-led organizations, and individuals with lived experience to engage their communities can help support efforts to ensure continuity of coverage. This issue brief provides recommendations for states work with these organizations to mitigate coverage loss.