Publications

The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. This webinar introduced a tool developed at Boston Children’s Hospital to measure how families experience integration of care for their children with special health care needs.

Limited access to mental health services for children is a well-recognized national problem. The authors suggest that while increasing the supply of providers is a challenge, a demand side approach offers a promising strategy to addressing access issues. Preventing the development or reducing the severity of child and adolescent emotional disorders hold great promise as cost-effective ways to reduce the demand for scarce services, they write.

Pediatric patients and their families rountinely should have the opportunity to give feedback on the health services they receive, and should have their feedback thoughtfully considered by providers, says Edward L. Schor, MD.

Although children with special health care needs (CSHCN) fare better when they are cared for in a "medical home," only a small percentage receive such care. A survey queried California board-certified pediatricians about their experience in caring for CSHCN and their thoughts on system changes that could enhance their willingness to provide a medical home.

Nearly half of children with special health care needs rely on Medicaid. Edwin Park of the Center on Budget and Policy Priorities provides an analysis of the consequences of changing Medicaid to a block grant program.

Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.

A culturally specific "party" strategy has enabled Fiesta Educativa to support thousands of Latino families with developmental disabilities.

Thousands of people have visited our "Super Parents" photography project since its launch last month. Here we share some behind-the-scenes moments to explain how and why we produced this project, which was shot by Pulitzer Prize-winning photographer, Deanne Fitzmaurice.