Many states cover mental health home and community‐based services (HCBS) for youth through Medicaid waivers. Authors of the article evaluated how states are covering mental health services using Medicaid waivers and compared this to waivers being used to cover services for other pediatric conditions. The findings indicate broad variability in waiver eligibility, transition plans, services covered, and waitlists across populations of youth covered by waivers.
Clear communication between families and health care providers is essential to the delivery of high-quality care for children with medical complexity. Marsha Perez, parent mentor for Spanish-speaking families at the Lucile Packard Children’s Hospital, shares tips for health care professionals on how best to communicate with Spanish-speaking families.
These case studies demonstrate how three organizations used the Family Engagement in Systems Assessment Tools (FESAT) to plan, assess, or improve family engagement policies and practices in systems-level initiatives.
This article describes how the National Standards for Systems of Care for CYSHCN served as a framework for the redesign of two state Medicaid managed care programs: a statewide managed care plan for children with medical complexity in Florida and a regional accountable care program serving children in Colorado.
In this webinar, authors discuss their article, titled Moving from Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs. Speakers describe their study's findings, and present potential research topics to address the gaps in investing in children’s health.
This brief describes key considerations and challenges in care coordination quality measurement and identifies sample metrics that could be leveraged to evaluate the quality of care coordination systems.
This guide is intended to support state health officials and stakeholders in using, adapting, and implementing the National Care Coordination Standards for CYSHCN to develop or improve care coordination systems.
There are a variety of approaches that states can use to finance care coordination services for CYSHCN through Medicaid. Financing of care coordination is critical to the quality and sustainability of these services. This brief highlights key components and themes across five states’ approaches to financing care coordination.
This is the final seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Cara Coleman, Dr. Peter Rosenbaum, and Treeby Brown discuss patient engagement in clinical research.