Social and environmental factors contribute to health inequities among children and youth with special health care needs (CYSHCN). While still an emerging field of research, authors stress the need for greater understanding of the patterns and impacts of social determinants of health as experienced by CYSHCN.
A national group of researchers and family leaders aim to improve the system of care for children and youth with special health care needs (CYSHCN) through the establishment of a family-centered national research agenda. This supplement to Academic Pediatrics provides a blueprint of research priorities that address health outcomes and the well-being of CYSHCN.
Telehealth has the potential to improve quality of care, particularly deficiencies related to access and patient experience of care. Telehealth may also reduce disparities for children and youth with special health care needs (CYSHCN) by alleviating barriers to accessing in-person care, for example, making it easier to access care for those residing in rural areas and children with medical complexity who are particularly fragile. Authors review the current knowledge around telehealth, identify populations for whom telehealth could be especially beneficial, discuss the important gaps identified, and make recommendations for specific studies that will help move the field forward.
This executive summary introduces the National Research Agenda on Health Systems for Children and Youth With Special Health Care Needs, a supplement to Academic Pediatrics. Authors identify six research priorities aimed at improving health outcomes and well-being for children and youth with special health needs and their families: transition to adulthood, caregiving, family health, child health care, principles of care, and financing.
Researchers and family leaders from across the country partnered to develop a national research agenda focused on improving the health care system for children and youth with special health care needs. This webinar focuses on research priorities in caregiving for children with special health care needs.
This is the sixth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Co-leads Dr. Eyal Cohen and Dr. Catherine Diskin will be joined by Dr. Laurie Glader, Dr. Nathan Rosenberg, Maureen Benschoter, and Sarah Perkins to discuss disorders of tone.
Researchers worked with family caregivers to incorporate their expertise on caregiving and lay a better foundation for successful integration between health care settings, family caregiving, and community supports for families of children and youth with special health care needs (CYSHCN). This article identifies high-priority gaps in CYSHCN caregiving research and proposes research questions that could increase the evidence-base for understanding of the work of family caregivers and how best to support them.
This guide contains a step-by-step approach for state Medicaid and managed care organizations as well as commercial payers interested in starting a value-based payment initiative around pediatric-to-adult transitional care. Each of the steps includes several issues and strategies to consider, tips, and examples.
This is the fifth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Co-leads Dr. Eyal Cohen and Dr. Catherine Diskin will be joined by David Fox, Jill McCormick, and Brennan McCormick to discuss shared decision making in the care of children with medical complexity.
A three-day workshop explored the challenges and opportunities related to building an optimal integrated care system for people with intellectual and developmental disabilities. Speakers discussed models of care, workforce issues, financing and payment for care, and more.