Publications

Eight years after their launch in 2012, the National Standards for Systems of Care for Children and Youth with Special Health Care Needs are becoming increasingly influential, including being used as a framework in multiple states to develop policies and to write managed care contracts.

Learn how a San Joaquin County coalition connected with committed partners and forged new relationships to effect systems change.

Learn how an Orange County collaborative leveraged positive working relationships and invested partners to bridge gaps in access to care for CSHCN. 

The California Community Care Coordination Collaborative (5Cs), brought together agencies and families to identify and address local issues that arise from the painfully fragmented systems of care that California’s children with special health care needs and their families must navigate.

Being discharged from the hospital is a vulnerable time for families and caregivers of children with special health care needs (CSHCN). Appropriate resources and support are essential for care at home and can prevent complications or readmission. The California-based Nurse-led Discharge Learning (CANDLE) Collaborative brings together interdisciplinary clinicians to improve discharge care delivery for CSHCN. Learn about two new discharge practices: closed-loop medication reconciliation and tailored medication teaching, and multidisciplinary discharge rounds with early discharge notification. Speakers share how these innovative practices can be integrated into existing clinical workflows. 

Issues Research, Inc. evaluated the influence of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) on health care systems. The report synthesizes the views of 50 stakeholders to describe the uptake and influence of the National Standards as well as remaining opportunities to promote their use among key audiences.

To assist state Medicaid agencies and managed care organizations in improving access to recommended pediatric-to adult health care transition services for their enrollees, this report offers specific options for managed care contract language that can be incorporated into standard and specialty contracts.

A set of one-pagers that highlight the five most utilized National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) domains. Each overview defines the core component within the system of care, provides relevant quality measures, and examples of state implementation.

Research from Public Counsel finds that longstanding inequities in access to Regional Center services are worsening for children of color.

An independent evaluation of the California Community Care Coordination Collaborative (5Cs), a program that brings together agencies and families to identify and address local issues that arise from the painfully fragmented systems of care that California’s children with special health care needs and their families must navigate.