• Event and Webinar Recaps

    A Conversation on the Effect of Payment Models in Children’s Health Care

    Proposed changes in health care payment, from fee-for-service to alternative, risk-sharing payment models, can have a substantial impact on health services for children, especially those with complex care needs. In addition, tying payment to value can increase use of ambulatory and preventive services and encourage creative outreach. However, abrupt changes can interrupt continuity and reduce access to care. 

  • Event and Webinar Recaps

    A Conversation on Ethical Considerations for a Fair and Effective Health Care System

    What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable tradeoffs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefitting individual patients and families and securing fair distribution of benefits across populations, to operating in a manner that is transparent and free from conflicts of interest. 

  • Insights

    Family-to-Family Health Information Centers: Pathways to Partnerships

    Whether it’s facing the shock of a first diagnosis or responding to the many challenges along the way, parents of children with special health care needs often find that their most highly valued source of support is an experienced and knowledgeable parent who has navigated the same path. But where to find such a parent? Family-to-Family Health Information Centers may provide the answer.

  • Research & Reports

    Recommendations for Value-Based Transition Payment for Pediatric and Adult Health Care Systems

    The critical handoff from pediatric to adult care providers often fails to occur, in part because no payment mechanisms are available to either practice. To address this, the National Alliance to Advance Adolescent Health convened a multidisciplinary group of stakeholders to develop recommendations for pediatric-to-adult transition value-based payment (VBP) strategies and quality measures. Their findings are outlined in this new report.

  • Event and Webinar Recaps

    A Conversation on Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction

    Sufficient access to services for children with medical complexity varies considerably by state, geographic region, and payer. Families, advocates, and health care professionals need to understand children’s rights. Policymakers and payers must help support reliable and appropriate coverage and benefits. Learn how medical-legal partnerships and other forms of advocacy can protect the rights of children and support families in an era of cost containment. 

  • Journal Articles

    A Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health

    Children with medical complexity account for about 40 percent of pediatric Medicaid spending, yet comprise only 3 percent of the pediatric population. Currently, no population measures exist to describe these children, who have diverse conditions of variable severity. A study published in Pediatrics suggests 10 potential outcome domains as a starting point. 

  • Issue Briefs

    A Better Way: Team Care for Children with Special Health Care Needs

    Team-based health care is a key component of the Chronic Care Model, which has shown to be successful for adults with chronic conditions.  As the number of children with chronic conditions grows, and payers seek innovative ways to increase efficiency and effectiveness, it may be time to invest in restructuring pediatric practice to promote team-based care. 

  • Event and Webinar Recaps

    A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions

    While self-management support has been a component of adult chronic care for decades, it is just emerging as a critical need for children, especially those with complex conditions. Self-management is a shared undertaking between the child, their parents and care providers, and must take into account the child’s developmental status and the family’s capacities. Clinicians need routine, standardized approaches and tools to address the unique needs of children and their families including assessing self-management skills, collaboratively setting goals, and promoting competence and autonomy in youth. 

  • Event and Webinar Recaps

    A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?

    Care coordination is an important approach to addressing the fragmented care that children with medical complexity often encounter. What are optimal care coordination services? How does care coordination intersect with care integration and case management? Learn best practices and how to implement a process that will achieve improved outcomes and value for children with special health care needs and their families. 

  • Insights

    Learning by Doing: Maternal Depression Screening and Family Psychosocial Risk Assessment

    Child health professionals increasingly are being asked to include screening for adverse early experiences as part of routine preventive pediatric care. Screening and providing appropriate follow-up would be a huge challenge for most practices. A good first step might be to incorporate routine screening for maternal depression, one of the most common risk factors for family psychosocial problems.