Janice Milligan once had to sell her car to pay for a wheelchair for her adopted daughter, who had spina bifida. She had just moved to California and didn’t know that she potentially could qualify for California Children’s Services (CCS) and aid from the state’s system of regional centers for people with disabilities. That was two decades ago. Today, Milligan is director of strategy and development at Health Net of California.
Her role as mom and caregiver for a child with special health care needs automatically qualified her as chauffeur, case manager, care coordinator and advocate. Learn more about one mother’s experience during National Family Caregivers Month.
As manager of Help Me Grow Orange County, Rebecca Hernandez has for years helped connect families to health professionals and support services when they have concerns about their children’s health and development.
What would care coordination look like if families received support and training for their role as principal care coordinators for their child with special health care needs? A new issue brief from the Lucile Packard Foundation for Children’s Health proposes a series of attributes that would characterize true family-centered care coordination.