• Journal Articles

    A National Health Systems Research Agenda for Children and Youth With Special Health Care Needs: Supplement to Academic Pediatrics

    A national group of researchers and family leaders aim to improve the system of care for children and youth with special health care needs (CYSHCN) through the establishment of a family-centered national research agenda. This supplement to Academic Pediatrics provides a blueprint of research priorities that address health outcomes and the well-being of CYSHCN.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 6: Disorders of Tone

    This is the sixth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Co-leads Dr. Eyal Cohen and Dr. Catherine Diskin will be joined by Dr. Laurie Glader, Dr. Nathan Rosenberg, Maureen Benschoter, and Sarah Perkins to discuss disorders of tone.

  • Journal Articles

    Understanding Caregiving and Caregivers: Supporting Children and Youth With Special Health Care Needs at Home

    Researchers worked with family caregivers to incorporate their expertise on caregiving and lay a better foundation for successful integration between health care settings, family caregiving, and community supports for families of children and youth with special health care needs (CYSHCN). This article identifies high-priority gaps in CYSHCN caregiving research and proposes research questions that could increase the evidence-base for understanding of the work of family caregivers and how best to support them.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 5: Shared Decision Making

    This is the fifth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Co-leads Dr. Eyal Cohen and Dr. Catherine Diskin will be joined by David Fox, Jill McCormick, and Brennan McCormick to discuss shared decision making in the care of children with medical complexity.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 4: Behavior/Child Mental Health

    This is the fourth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Co-leads Dr. Eyal Cohen and Dr. Catherine Diskin were joined by Shawnda Hicks, Tina Andrews, and Dr. Antonio Hardan to discuss Behavior and Child Mental Health.

  • Event and Webinar Recaps

    A Family-Centered Research Agenda for Improving Health Care Transitions for Children with Special Health Care Needs

    In this webinar, authors discuss their article titled Improving Health Care Transitions for Children and Youth with Special Health Care Needs. Speakers highlight the health care transition process for adolescents and young adults with special health care needs, describe study findings, and reflect on the implications of their recommendations.

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